Comments on: "What breast cancer is, and is not" http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html Brain candy for Happy Mutants Mon, 20 May 2013 07:50:00 +0000 hourly 1 http://wordpress.org/?v=3.4.1 By: esquire http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340505 esquire Wed, 08 Feb 2012 19:45:00 +0000 http://boingboing.net/?p=142713#comment-1340505 Beautiful and powerful.  Thanks!  Beautiful and powerful.  Thanks! 

]]> By: Alan Wexelblat http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340423 Alan Wexelblat Wed, 08 Feb 2012 18:38:00 +0000 http://boingboing.net/?p=142713#comment-1340423 I think it's good and necessary that she's gone but I still want to know what SGK is going to do to _show_ (and I mean actions, not just press releases) that they have refocused their mission on breast cancer. Until they take concrete steps to restore trust they aren't getting any more of my $$. All the friends I have supported in the walk have agreed that they will do fundraising activities and contribute the money to the important work of fighting breast cancer.  Cancer sucks, and so do political agendas. I think it’s good and necessary that she’s gone but I still want to know what SGK is going to do to _show_ (and I mean actions, not just press releases) that they have refocused their mission on breast cancer. Until they take concrete steps to restore trust they aren’t getting any more of my $$. All the friends I have supported in the walk have agreed that they will do fundraising activities and contribute the money to the important work of fighting breast cancer.  Cancer sucks, and so do political agendas.

]]> By: Ashley Barber http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340378 Ashley Barber Wed, 08 Feb 2012 17:51:00 +0000 http://boingboing.net/?p=142713#comment-1340378 This is amazing, thank you for posting. My mother went through almost the same exact experiences as Linda, and I find that what she said is extremely true. Cancer is all of those things, yet it's also a process that teaches you to be frank, to be honest, and to tell it like it is. I think the world could use more of that (minus the cancer, of course) This is amazing, thank you for posting. My mother went through almost the same exact experiences as Linda, and I find that what she said is extremely true. Cancer is all of those things, yet it’s also a process that teaches you to be frank, to be honest, and to tell it like it is. I think the world could use more of that (minus the cancer, of course)

]]> By: Jeffrey Swainhart http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340204 Jeffrey Swainhart Wed, 08 Feb 2012 14:53:00 +0000 http://boingboing.net/?p=142713#comment-1340204 Awesome. Thank you. Awesome. Thank you.

]]> By: Richard http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340179 Richard Wed, 08 Feb 2012 13:42:00 +0000 http://boingboing.net/?p=142713#comment-1340179 Bravo, an amazing piece of work. Everyone needs to see this video, thanks for posting it Xeni. Bravo, an amazing piece of work. Everyone needs to see this video, thanks for posting it Xeni.

]]> By: D. Keith Higgs http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340144 D. Keith Higgs Wed, 08 Feb 2012 12:22:00 +0000 http://boingboing.net/?p=142713#comment-1340144 Brava! And, yes, that IS the correct form of the word.  Brava! An excellent, informative, enlightening piece of work.  It puts breast cancer more on the kitchen table without being scandalous or exploitive. Brava! And, yes, that IS the correct form of the word.  Brava!

An excellent, informative, enlightening piece of work.  It puts breast cancer more on the kitchen table without being scandalous or exploitive.

]]> By: CH http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340125 CH Wed, 08 Feb 2012 11:36:00 +0000 http://boingboing.net/?p=142713#comment-1340125 Standing ovation!!! That was one kick ass video!!! Yes, yes, bravo!!! Standing ovation!!! That was one kick ass video!!! Yes, yes, bravo!!!

]]> By: Rindan http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340085 Rindan Wed, 08 Feb 2012 08:14:00 +0000 http://boingboing.net/?p=142713#comment-1340085 Kormen being an "awareness" organization is one of the reasons why I have a hard time giving them money.  There really was a time when we needed awareness because people had a hard time saying the "breast" in breast cancer .  That time is long since past.  You literally can't name another malady that people are more aware of.  I don't even have breasts, and I have a better sense of what I would need to do to watch out of breast cancer than I do something I might actually get, like prostate or testicular cancer.  I really have little desire to fund more "awareness" and pink wash every thing that can accept a coating of pink paint.   There is a point of diminishing returns, and we have long past it. Research and treatment is what is needed, and I am a tad skeptical that Kormen is the right organization to most efficiently hand out that money. Kormen being an “awareness” organization is one of the reasons why I have a hard time giving them money.  There really was a time when we needed awareness because people had a hard time saying the “breast” in breast cancer .  That time is long since past.  You literally can’t name another malady that people are more aware of.  I don’t even have breasts, and I have a better sense of what I would need to do to watch out of breast cancer than I do something I might actually get, like prostate or testicular cancer.  I really have little desire to fund more “awareness” and pink wash every thing that can accept a coating of pink paint.   There is a point of diminishing returns, and we have long past it.

Research and treatment is what is needed, and I am a tad skeptical that Kormen is the right organization to most efficiently hand out that money.

]]> By: fanciulla http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340049 fanciulla Wed, 08 Feb 2012 05:58:00 +0000 http://boingboing.net/?p=142713#comment-1340049 Breast cancer and chemo survivor here -- seven years past, and everything's copacetic -- sending all the best SoCal mojo and good thoughts to you, Xeni.  And thanks to Linda for one hell of a great video.  Breast cancer and chemo survivor here — seven years past, and everything’s copacetic — sending all the best SoCal mojo and good thoughts to you, Xeni.  And thanks to Linda for one hell of a great video. 

]]> By: morgane http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340048 morgane Wed, 08 Feb 2012 05:56:00 +0000 http://boingboing.net/?p=142713#comment-1340048 what a  FANTASTIC woman! also, don't forget about this important documentary Pink Ribbons Inc by Léa Pool, from the National Film Board of Canada. http://www.onf-nfb.gc.ca/eng/collection/film/?id=57943 see it before our fucking tory govt close the NFB. They could you know. what a  FANTASTIC woman!

also, don’t forget about this important documentary Pink Ribbons Inc by Léa Pool, from the National Film Board of Canada.

http://www.onf-nfb.gc.ca/eng/collection/film/?id=57943

see it before our fucking tory govt close the NFB. They could you know.

]]> By: cstatman http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1340034 cstatman Wed, 08 Feb 2012 05:07:00 +0000 http://boingboing.net/?p=142713#comment-1340034 I saw her video last week as the Komen deal imploded, but I must say?  Linda is strong, surviving and AWESOME.      One line, one phrase? could completely describe my life now  "Cancer removes all your filters"   As I WILL say whatever I think/feel now.  Life is too short to worry about what "other people think"    As everyone who knows me can attest?  this is not always the best thing. Hooray for Linda, and as always, best luck, wishes and hopes for you.   If you EVER need anything, you call on me.    the "we survived cancer club" is always willing to help anyone. I saw her video last week as the Komen deal imploded, but I must say?  Linda is strong, surviving and AWESOME.      One line, one phrase? could completely describe my life now  “Cancer removes all your filters”   As I WILL say whatever I think/feel now.  Life is too short to worry about what “other people think”    As everyone who knows me can attest?  this is not always the best thing.

Hooray for Linda, and as always, best luck, wishes and hopes for you.   If you EVER need anything, you call on me.    the “we survived cancer club” is always willing to help anyone.

]]> By: bingo http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339959 bingo Wed, 08 Feb 2012 02:38:00 +0000 http://boingboing.net/?p=142713#comment-1339959 wow.  powerful. wow.  powerful.

]]> By: robuluz http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339951 robuluz Wed, 08 Feb 2012 02:32:00 +0000 http://boingboing.net/?p=142713#comment-1339951 Hell yeah! Hell yeah!

]]> By: yeahyeahwhtever http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339941 yeahyeahwhtever Wed, 08 Feb 2012 02:21:00 +0000 http://boingboing.net/?p=142713#comment-1339941 Wow.  Respect! and Thank you. Wow.  Respect!
and Thank you.

]]> By: millie fink http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339931 millie fink Wed, 08 Feb 2012 02:11:00 +0000 http://boingboing.net/?p=142713#comment-1339931 Holy crap, that's awesome on a lot of levels. I can't thank her enough for doing that. Thanks to you too Xeni, and I'm glad you seem to have found some strength in it. Holy crap, that’s awesome on a lot of levels. I can’t thank her enough for doing that. Thanks to you too Xeni, and I’m glad you seem to have found some strength in it.

]]> By: pjk http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339927 pjk Wed, 08 Feb 2012 02:09:00 +0000 http://boingboing.net/?p=142713#comment-1339927 wow... awesome! wow… awesome!

]]> By: technogeekagain http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339884 technogeekagain Wed, 08 Feb 2012 01:07:00 +0000 http://boingboing.net/?p=142713#comment-1339884 More applause for Ms. Burger. Direct and to the point. Kormen blew a LOT of their goodwill by not only backing away from Planned Parenthood -- which they could have done by simply finding another partner or another priority -- but by making it about the "investigation" which is entirely bogus and entirely political. And, in the process, they brought up the whole question of funding and forced folks to realize that Kormen isn't exactly a shining paragon of efficiency in the use of donor funds. Admittedly they're partly an awareness organization, and that's hard to measure... but still, there are many other groups in the cancer, and specifically breast cancer, space who may not be as effective at raising money but may be more effective at using it. Getting Ms. Handel off the board is a good first step, but it's only a first step. They're going to be getting a LOT of scrutiny for a while. I'm not sure they'll survive it. I just hope other organizations are able to pick up the support, and fill the gaps, that SGK's foolishness has cost their cause. More applause for Ms. Burger. Direct and to the point.

Kormen blew a LOT of their goodwill by not only backing away from Planned Parenthood — which they could have done by simply finding another partner or another priority — but by making it about the “investigation” which is entirely bogus and entirely political.

And, in the process, they brought up the whole question of funding and forced folks to realize that Kormen isn’t exactly a shining paragon of efficiency in the use of donor funds. Admittedly they’re partly an awareness organization, and that’s hard to measure… but still, there are many other groups in the cancer, and specifically breast cancer, space who may not be as effective at raising money but may be more effective at using it.

Getting Ms. Handel off the board is a good first step, but it’s only a first step. They’re going to be getting a LOT of scrutiny for a while. I’m not sure they’ll survive it. I just hope other organizations are able to pick up the support, and fill the gaps, that SGK’s foolishness has cost their cause.

]]> By: Antinous / Moderator http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339880 Antinous / Moderator Wed, 08 Feb 2012 01:05:00 +0000 http://boingboing.net/?p=142713#comment-1339880 It's one of those things where, even if you strip away any political considerations, you wonder how someone could be so dense.  But given that she's a politician and a business executive, I guess it's not that shocking that she's clueless. It’s one of those things where, even if you strip away any political considerations, you wonder how someone could be so dense.  But given that she’s a politician and a business executive, I guess it’s not that shocking that she’s clueless.

]]> By: Donna Maderer http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339865 Donna Maderer Wed, 08 Feb 2012 00:47:00 +0000 http://boingboing.net/?p=142713#comment-1339865 Xeni, you're gonna make it and you're gonna continue to rock the house con brio! My best bud/housemate/sister/wife (if I didn't already have an old man that is) just had a total boobectomy (her term -- if we can't laugh, what was the point to getting this crazy ass shit)  last Tuesday (as preventative measure because her first dance with the cancer beast came at the tender age of 35). This was written on the eve of her surgery. http://donna-tellmeastory.blogspot.com/2012/01/stayin-alive.html Xeni, you’re gonna make it and you’re gonna continue to rock the house con brio!

My best bud/housemate/sister/wife (if I didn’t already have an old man that is) just had a total boobectomy (her term — if we can’t laugh, what was the point to getting this crazy ass shit)  last Tuesday (as preventative measure because her first dance with the cancer beast came at the tender age of 35).

This was written on the eve of her surgery. http://donna-tellmeastory.blogspot.com/2012/01/stayin-alive.html

]]> By: Stephanie Poole http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339853 Stephanie Poole Wed, 08 Feb 2012 00:32:00 +0000 http://boingboing.net/?p=142713#comment-1339853 Thanks for posting this, Xeni. It's wonderful and I'll be sharing. I hope that your battle is going well;  if good wishes were enough to fix it you'd be cured already. Thanks for posting this, Xeni. It’s wonderful and I’ll be sharing. I hope that your battle is going well;  if good wishes were enough to fix it you’d be cured already.

]]> By: Shibi_SF http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339845 Shibi_SF Wed, 08 Feb 2012 00:25:00 +0000 http://boingboing.net/?p=142713#comment-1339845 Linda Burger!  She is one fine lady.  And, I never would have known how awesome she is without your post, Xeni.  Thanks for sharing her video.   Linda Burger!  She is one fine lady.  And, I never would have known how awesome she is without your post, Xeni.  Thanks for sharing her video.  

]]> By: JoshP http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339837 JoshP Wed, 08 Feb 2012 00:13:00 +0000 http://boingboing.net/?p=142713#comment-1339837 umm... Wow. umm… Wow.

]]> By: Sergio http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339839 Sergio Wed, 08 Feb 2012 00:13:00 +0000 http://boingboing.net/?p=142713#comment-1339839 what  a badass  what  a badass 

]]> By: Cowicide http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339826 Cowicide Wed, 08 Feb 2012 00:05:00 +0000 http://boingboing.net/?p=142713#comment-1339826 271,105 views so far. Wonderful.  Thank you for posting this, Xeni. 271,105 views so far. Wonderful.  Thank you for posting this, Xeni.

]]> By: Xeni Jardin http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339813 Xeni Jardin Tue, 07 Feb 2012 23:50:00 +0000 http://boingboing.net/?p=142713#comment-1339813 indeed! It's linked in the first graf of this post, too. Not the only source of rot in that organization, but it's a start.  indeed! It’s linked in the first graf of this post, too. Not the only source of rot in that organization, but it’s a start. 

]]> By: Antinous / Moderator http://boingboing.net/2012/02/07/what-breast-cancer-is-and-i.html#comment-1339808 Antinous / Moderator Tue, 07 Feb 2012 23:47:00 +0000 http://boingboing.net/?p=142713#comment-1339808 I see that Karen Handel has finally been shit out quit.  http://www.huffingtonpost.com/2012/02/07/karen-handel-quits-susan-g-komen_n_1259835.html I see that Karen Handel has finally been shit out quit.  http://www.huffingtonpost.com/2012/02/07/karen-handel-quits-susan-g-komen_n_1259835.html

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