- arbitrary aardvark

A key distinction about PGP data is that we don’t consider genomes to be truly “anonymizable”, especially not when combined with other data like health information. (This is broadly held to be true in research; for this reason, most genetic data from studies that gets collected these days is only shared in a controlled-access manner, e.g. through “dbGaP”.)

So, I hesitate to use the term “anonymized” to refer to anything in our project — especially when many participants choose to be explicitly public about which account belongs to them (although this is not required). Among other things, our “open consent” process involves understanding the risk of re-identification. It’s not for everyone, but through this process researchers can take advantage of people willing to donate their data — and privacy, potentially — to science. You can read more about it on our study guide: http://www.personalgenomes.org/exam/v20120430-study-guide.pdf
Currently, if you’re looking for the data you can genome and genotyping files linked on personal genome reports here: http://evidence.personalgenomes.org/genomes and linked to participant profiles here: https://my.personalgenomes.org/users (The first link is limited to genome & exome data.)With respect to things like opensnp.org: one key element for use of data by researchers is that the data is collected under an IRB-approved process. People who join the PGP can also upload and donate their 23andme & deCODEme data & etc., with the benefit of it being very “kosher” for researchers to use — if anyone has uploaded to other sites, I suggest they also consider enrolling in the PGP.  :-)

By now you can also upload your FamilyTreeDNA-genotyping data as well as your Exome if you’re one of 23andMe-early-exome-adopters.

And can provide phenotypic information (hair/eye colour, genetic diseases you might have et al.) about yourself as well. The data gets also published under CC Zero :-)