Comments on: This is how you do a video PSA about childhood cancer. http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html Brain candy for Happy Mutants Thu, 23 May 2013 16:44:00 +0000 hourly 1 http://wordpress.org/?v=3.4.1 By: Peter Schwaller http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1523209 Peter Schwaller Sat, 01 Sep 2012 00:43:00 +0000 http://boingboing.net/?p=178799#comment-1523209  Signed up too.  Signed up too.

]]> By: Roseanne Winn http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1522946 Roseanne Winn Fri, 31 Aug 2012 19:50:00 +0000 http://boingboing.net/?p=178799#comment-1522946 Great PSA. Also important stuff to note: Lots of people - especially minorities and people of mixed race - die waiting for a match. Also, it seems that children get bone marrow transplants, but most often a simpler procedure is used to get blood stem cells. Finally, even if you are on the registry (and thanks! if you are) blood cancer patients are always in need of blood and PLATELETS. They help your blood clot. There are few things scarier than needing them and being told the hospital is all out - and that happens. Thanks for a great article Xeni, and hope you are doing well! Great PSA. Also important stuff to note: Lots of people – especially minorities and people of mixed race – die waiting for a match. Also, it seems that children get bone marrow transplants, but most often a simpler procedure is used to get blood stem cells. Finally, even if you are on the registry (and thanks! if you are) blood cancer patients are always in need of blood and PLATELETS. They help your blood clot. There are few things scarier than needing them and being told the hospital is all out – and that happens. Thanks for a great article Xeni, and hope you are doing well!

]]> By: Dr. Deanna Attai http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1522423 Dr. Deanna Attai Fri, 31 Aug 2012 14:02:00 +0000 http://boingboing.net/?p=178799#comment-1522423 It is truly amazing that we live in an age that a little boy can be saved by a woman thousands of miles away - a woman who thought nothing but to inconvenience herself slightly so that someone else might have the gift of life. It is a gift - this life that we have - made all the more valuable when we give pieces of it to others. Beautiful video and post - thank you, Xeni. It is truly amazing that we live in an age that a little boy can be saved by a woman thousands of miles away – a woman who thought nothing but to inconvenience herself slightly so that someone else might have the gift of life. It is a gift – this life that we have – made all the more valuable when we give pieces of it to others. Beautiful video and post – thank you, Xeni.

]]> By: mocon http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1522235 mocon Fri, 31 Aug 2012 02:08:00 +0000 http://boingboing.net/?p=178799#comment-1522235 > 18-44 are better matches as younger donors produce more and > higher quality cells. But my cells have a certain worldly wisdom that an 18 year old's cells just can't match. > 18-44 are better matches as younger donors produce more and
> higher quality cells.

But my cells have a certain worldly wisdom that an 18 year old’s cells just can’t match.

]]> By: adamslisa http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1522202 adamslisa Fri, 31 Aug 2012 00:59:00 +0000 http://boingboing.net/?p=178799#comment-1522202 I waited until I was finally home today to watch this. What a beautiful video and story. My best friend's son had leukemia. He relapsed while still undergoing chemo, a rare occurrence. He was fortunate enough to have a perfect bone marrow match in his younger sister, Grace. She saved his life. There isn't a time that I see them that I don't think about this... and how lucky he was to have a match in the family.  This story reminds us how valuable selflessness can be. My friend wanted to give back after her daughter saved her son's life. She wasn't sure what to do. Then she realized she could volunteer to be a donor herself. She sent in her cheek swab and hopes to give the gift of life to someone else.  Thank you for sharing, Xeni. I waited until I was finally home today to watch this. What a beautiful video and story. My best friend’s son had leukemia. He relapsed while still undergoing chemo, a rare occurrence. He was fortunate enough to have a perfect bone marrow match in his younger sister, Grace. She saved his life. There isn’t a time that I see them that I don’t think about this… and how lucky he was to have a match in the family. 

This story reminds us how valuable selflessness can be. My friend wanted to give back after her daughter saved her son’s life. She wasn’t sure what to do. Then she realized she could volunteer to be a donor herself. She sent in her cheek swab and hopes to give the gift of life to someone else. 

Thank you for sharing, Xeni.

]]> By: Adrian Powell http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1522040 Adrian Powell Thu, 30 Aug 2012 22:10:00 +0000 http://boingboing.net/?p=178799#comment-1522040 For Canadians, sign up here: http://www.blood.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/E_ubmdrPKG-intro?OpenDocument&p=OMFormE I just did. For Canadians, sign up here: http://www.blood.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/E_ubmdrPKG-intro?OpenDocument&p=OMFormE

I just did.

]]> By: Mark Malone http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521933 Mark Malone Thu, 30 Aug 2012 20:52:00 +0000 http://boingboing.net/?p=178799#comment-1521933 I was probably not supposed to cry but I did.  So touching. I'm singing up. I was probably not supposed to cry but I did.  So touching. I’m singing up.

]]> By: ldobe http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521846 ldobe Thu, 30 Aug 2012 19:42:00 +0000 http://boingboing.net/?p=178799#comment-1521846  Forgive my ignorance, but aren't most bone marrow transplants taken from the donor's pelvis?  If so, how would damage to the vertebrae preclude one from donation.  If I'm wrong about most donations from the pelvis, please correct me, as only a fool wouldn't care to learn from his mistake.  Forgive my ignorance, but aren’t most bone marrow transplants taken from the donor’s pelvis?  If so, how would damage to the vertebrae preclude one from donation.  If I’m wrong about most donations from the pelvis, please correct me, as only a fool wouldn’t care to learn from his mistake.

]]> By: Jody Schoger http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521838 Jody Schoger Thu, 30 Aug 2012 19:35:00 +0000 http://boingboing.net/?p=178799#comment-1521838 Xeni, Beautifully done.  Thanks so much for bringing this to our attention. Real people, telling their stories.  This is all people need to understand the reality of cancer.  And I agree with your thoughts on pity.  The person who pities is not real. Pity turns people with cancer in to objects.   Lord knows we aren't:) jms Xeni,
Beautifully done.  Thanks so much for bringing this to our attention.

Real people, telling their stories.  This is all people need to understand the reality of cancer. 

And I agree with your thoughts on pity.  The person who pities is not real. Pity turns people with cancer in to objects.  

Lord knows we aren’t:)
jms

]]> By: Xeni Jardin http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521819 Xeni Jardin Thu, 30 Aug 2012 19:23:00 +0000 http://boingboing.net/?p=178799#comment-1521819 nice! nice!

]]> By: Alexis Kaloyanides http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521816 Alexis Kaloyanides Thu, 30 Aug 2012 19:21:00 +0000 http://boingboing.net/?p=178799#comment-1521816 Thanks for sharing this. What a great video. Totally made the waterworks flow over here. My seven-year-old goddaughter just finished two years of treatment for leukemia (ALL) and is doing better than anyone could imagine. Sadly, two months after her last treatment, one of her friends was diagnosed with AML. What the hell are the odds?! Makes you realize how important it is to be a bone marrow donor if you can. Unfortunately, due to spinal fractures I suffered as a teen, I was deemed ineligible to be a bone marrow donor. But I donate blood as often as I'm allowed. Leukemia patients are given red cell treatments constantly to keep their counts up. You never know when you or a loved one will rely on the gift of a stranger.  Thanks for sharing this. What a great video. Totally made the waterworks flow over here. My seven-year-old goddaughter just finished two years of treatment for leukemia (ALL) and is doing better than anyone could imagine. Sadly, two months after her last treatment, one of her friends was diagnosed with AML. What the hell are the odds?! Makes you realize how important it is to be a bone marrow donor if you can. Unfortunately, due to spinal fractures I suffered as a teen, I was deemed ineligible to be a bone marrow donor. But I donate blood as often as I’m allowed. Leukemia patients are given red cell treatments constantly to keep their counts up. You never know when you or a loved one will rely on the gift of a stranger. 

]]> By: Xeni Jardin http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521810 Xeni Jardin Thu, 30 Aug 2012 19:17:00 +0000 http://boingboing.net/?p=178799#comment-1521810 Yeah. Bad UI on that landing page, but it *is* there: Yeah. Bad UI on that landing page, but it *is* there:

]]> By: jon_anon http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521798 jon_anon Thu, 30 Aug 2012 19:07:00 +0000 http://boingboing.net/?p=178799#comment-1521798 For Canadians: http://www.onematch.ca I just signed up. I couldn't give blood for years, because of a childhood spent in the land of mad cow disease (UK), but I've been meaning to register for bone marrow for a while now since my dad had a transplant (he was able to do autologous though). This beautiful vid spurred me into action. For Canadians: http://www.onematch.ca
I just signed up. I couldn’t give blood for years, because of a childhood spent in the land of mad cow disease (UK), but I’ve been meaning to register for bone marrow for a while now since my dad had a transplant (he was able to do autologous though). This beautiful vid spurred me into action.

]]> By: Jay Yeman http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521792 Jay Yeman Thu, 30 Aug 2012 19:00:00 +0000 http://boingboing.net/?p=178799#comment-1521792 Signed up. Signed up.

]]> By: Cakey McDoodle http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521786 Cakey McDoodle Thu, 30 Aug 2012 18:57:00 +0000 http://boingboing.net/?p=178799#comment-1521786 And for the Brits reading this: http://www.anthonynolan.org/ is where you can register!  And for the Brits reading this: http://www.anthonynolan.org/ is where you can register! 

]]> By: CH http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521755 CH Thu, 30 Aug 2012 18:32:00 +0000 http://boingboing.net/?p=178799#comment-1521755 My guess would be that donating bone marrow is done through (a small) surgery, and they don't want it to risk the donor in any way. And having diabetes would be an increased risk. I just checked what the rules are for registering in my country, and where as I previously didn't qualify due to weight I also now am permanently out due to age. (A bit strange rule there for my country... you cannot register if you are over 40, but you can stay until you are 55? But note, this was for my country, yours can have different rules.) Edit: Yes! For the US the age limits are 18-60, although 18-44 are better matches as younger donors produce more and higher quality cells. http://marrow.org/Join/Medical_Guidelines/Medical_Guidelines_for_Joining_the_Registry.aspx Edit2: And at least that medical guideline says that diabetes II in itself doesn't disqualify, but you will need a medical evaluation. "In general, if your diabetes is well controlled by either diet or oral medications, you will be allowed to register." My guess would be that donating bone marrow is done through (a small) surgery, and they don’t want it to risk the donor in any way. And having diabetes would be an increased risk.

I just checked what the rules are for registering in my country, and where as I previously didn’t qualify due to weight I also now am permanently out due to age. (A bit strange rule there for my country… you cannot register if you are over 40, but you can stay until you are 55? But note, this was for my country, yours can have different rules.) Edit: Yes! For the US the age limits are 18-60, although 18-44 are better matches as younger donors produce more and higher quality cells. http://marrow.org/Join/Medical_Guidelines/Medical_Guidelines_for_Joining_the_Registry.aspx

Edit2: And at least that medical guideline says that diabetes II in itself doesn’t disqualify, but you will need a medical evaluation. “In general, if your diabetes is well controlled by either diet or oral medications, you will be allowed to register.”

]]> By: Pablove Megan http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521754 Pablove Megan Thu, 30 Aug 2012 18:29:00 +0000 http://boingboing.net/?p=178799#comment-1521754 Amazing. Thanks for sharing Xeni. Amazing. Thanks for sharing Xeni.

]]> By: CH http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521752 CH Thu, 30 Aug 2012 18:27:00 +0000 http://boingboing.net/?p=178799#comment-1521752 Oh man, is it dusty in here! And my cold is really acting up. *sniff* That was truly beautiful! And really well done, it really brought, at least for me, a need to register as a donor too. Unfortunately I don't qualify. :( Oh man, is it dusty in here! And my cold is really acting up. *sniff*

That was truly beautiful! And really well done, it really brought, at least for me, a need to register as a donor too. Unfortunately I don’t qualify. :(

]]> By: Dennis Chon http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521750 Dennis Chon Thu, 30 Aug 2012 18:22:00 +0000 http://boingboing.net/?p=178799#comment-1521750 Very nice post. For those of you who find NMDP site a little complicated and/or cumbersome, my friend made a site: http://www.cheekswab.org Very nice post. For those of you who find NMDP site a little complicated and/or cumbersome, my friend made a site:

http://www.cheekswab.org

]]> By: Ivan Todorov http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521746 Ivan Todorov Thu, 30 Aug 2012 18:12:00 +0000 http://boingboing.net/?p=178799#comment-1521746 Yup. Jack is part of the BLITZ team (www.blitzagency.com) working with City of Hope. Cheers.  Yup. Jack is part of the BLITZ team (www.blitzagency.com) working with City of Hope. Cheers. 

]]> By: Dean Putney http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521743 Dean Putney Thu, 30 Aug 2012 18:10:00 +0000 http://boingboing.net/?p=178799#comment-1521743 That just led me down a bunch of links, none of which showing times or nearby places I can make a donation or be tested for one. Most of these show how to set up a drive. Edit: Finally found it. Here's the link to sign up for the registry: http://marrow.org/Join/Join_Now/Join_Now.aspx?promo_code=cityofhope That just led me down a bunch of links, none of which showing times or nearby places I can make a donation or be tested for one. Most of these show how to set up a drive.

Edit: Finally found it. Here’s the link to sign up for the registry: http://marrow.org/Join/Join_Now/Join_Now.aspx?promo_code=cityofhope

]]> By: Ivan Todorov http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521744 Ivan Todorov Thu, 30 Aug 2012 18:10:00 +0000 http://boingboing.net/?p=178799#comment-1521744 --- —

]]> By: TheKaz1969 http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521742 TheKaz1969 Thu, 30 Aug 2012 18:06:00 +0000 http://boingboing.net/?p=178799#comment-1521742 Damn you, boingboing. Damn you!! >snf< Damn you, boingboing. Damn you!! >snf<

]]> By: Xeni Jardin http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521709 Xeni Jardin Thu, 30 Aug 2012 17:39:00 +0000 http://boingboing.net/?p=178799#comment-1521709 Awesome job. Thanks for stopping by. Awesome job. Thanks for stopping by.

]]> By: CLamb http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521705 CLamb Thu, 30 Aug 2012 17:37:00 +0000 http://boingboing.net/?p=178799#comment-1521705 I signed up for their registry a decade ago but now that I've become a type II diabetic they tell me I'm no longer eligible.  Anyone know why? I signed up for their registry a decade ago but now that I’ve become a type II diabetic they tell me I’m no longer eligible.  Anyone know why?

]]> By: Sam Schlinkert http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521700 Sam Schlinkert Thu, 30 Aug 2012 17:35:00 +0000 http://boingboing.net/?p=178799#comment-1521700 My brother, Jack Schlinkert (@classyjack) produced and edited the doc. Thanks for posting!  My brother, Jack Schlinkert (@classyjack) produced and edited the doc. Thanks for posting! 

]]> By: Xeni Jardin http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521695 Xeni Jardin Thu, 30 Aug 2012 17:30:00 +0000 http://boingboing.net/?p=178799#comment-1521695 Link's in the last line in the blog post, silly bean! http://www.cityofhope.org/gavin Link’s in the last line in the blog post, silly bean!

http://www.cityofhope.org/gavin

]]> By: lasermike026 http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521689 lasermike026 Thu, 30 Aug 2012 17:23:00 +0000 http://boingboing.net/?p=178799#comment-1521689 So I type in my editor, "What is important?"  The next thing I did was to look to become a donor.   Hopefully I will follow through. So I type in my editor, “What is important?”  The next thing I did was to look to become a donor.   Hopefully I will follow through.

]]> By: Cooter_Holland http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521690 Cooter_Holland Thu, 30 Aug 2012 17:23:00 +0000 http://boingboing.net/?p=178799#comment-1521690 Xeni, as someone who produces advocacy videos, thank you so much for this example and your critique. My personal response to this video: How can I become a bone marrow donor? Xeni, as someone who produces advocacy videos, thank you so much for this example and your critique. My personal response to this video: How can I become a bone marrow donor?

]]> By: Carolin Shining http://boingboing.net/2012/08/30/this-is-how-you-do-a-video-psa.html#comment-1521684 Carolin Shining Thu, 30 Aug 2012 17:19:00 +0000 http://boingboing.net/?p=178799#comment-1521684 City of Hope is awesome.  They are the real deal.  Great post, Xeni. City of Hope is awesome.  They are the real deal.  Great post, Xeni.

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