I met Jimmy Lin last year at TED. He's a research instructor at Washington University in St. Louis and founder of the Rare Genomics Institute, a "non-profit that makes cutting edge research technologies and experts accessible to rare disease patients." Today, Jimmy announced a rare disease competition for the best research proposal. He says:
Today, Rare Genomics Institute and Assay Depot announced an innovative international contest to catalyze rare disease research. Rare diseases affect over 250 million people worldwide, yet less than five percent of the 7,000 known rare diseases have any therapy. We have gathered 19 companies to donate $400,000 worth of cutting edge technology, services, and cash. Our hope is that this will encourage non-profits, academic researchers, rare disease advocacy groups, families of rare disease patients and for-profit companies to collaborate to advance rare disease research. In addition to expert scientific review, we will also be awarding a $10,000 prize for the best idea that will be determined by Facebook voting.
The company says it will start selling Caramel Crunch and Thin Mints breakfast cereals in January. It’s not clear how the deal is structured and whether the cereals will be promoted as a way to make a charitable contribution to the Girl Scouts.
Security experts hired by the short-selling firm Muddy Waters said in a legal brief filed today that cardiac implants made by St. Jude Medical can be hacked. If hackers can pwn your heart device, the researchers say, they can kill you–from as far away as 100 feet.
The Chemical Weapons Convention has a giant loophole in that it allows for the stockpiling and use of chemical agents in law-enforcement; with the Eighth Review Conference of the Biological and Toxin Weapons Convention (BTWC) coming up next month, there’s an urgent question about whether “neuroweapons” (chemical agents intended to pacify or disperse people) will […]
Geek Fuel is a subscription delivery service that caters to those of us that love comics, gaming, and general geek culture. Every month, Geek Fuel will assemble a box of goodies with a value of $50 or over. The specific items are a mystery, but you’ll always get an exclusive t-shirt not found anywhere else, a full […]
If you like to DIY and you like helicopters, you’re going to really love the Flexbot Hexacopter Kit. This copter blows traditional models out of the water: it includes everything you need to actually build your own hexacopter, and then pilot it like a pro, too.The construction is complicated enough to give you a challenge, […]
This week’s top deals from the Boing Boing Store range from lobster to wine to desk organization. 1. Get Maine Lobster (50% Off)With these discounted packages from Get Maine Lobster, you can experience the sweet, fresh flavor of world-renowned Maine lobster right at your own dinner table. There are four options to choose from, each at […]