I met Jimmy Lin last year at TED. He's a research instructor at Washington University in St. Louis and founder of the Rare Genomics Institute, a "non-profit that makes cutting edge research technologies and experts accessible to rare disease patients." Today, Jimmy announced a rare disease competition for the best research proposal. He says:
Today, Rare Genomics Institute and Assay Depot announced an innovative international contest to catalyze rare disease research. Rare diseases affect over 250 million people worldwide, yet less than five percent of the 7,000 known rare diseases have any therapy. We have gathered 19 companies to donate $400,000 worth of cutting edge technology, services, and cash. Our hope is that this will encourage non-profits, academic researchers, rare disease advocacy groups, families of rare disease patients and for-profit companies to collaborate to advance rare disease research. In addition to expert scientific review, we will also be awarding a $10,000 prize for the best idea that will be determined by Facebook voting.
Assay Depot and Rare Genomics Institute Unite 19 Life Science Companies to Launch a Rare Disease Research Competition
Previously on Boing Boing: Crowdfunding rare disease research – one family at a time
Scientist Steve Mould developed an eye twitch, and in this video, he explains how and why it happens. Some of the causes include fatigue, over-exercise, and too much caffeine.
Dr. Shigeaki Hinohara died last month at age 105. Over his long life, he helped many others achieve long lives by popularizing annual medical checkups and by sharing what he knew, which was one of his tips for longer living:
Oriental Rat Flea (Xenopsylla cheopis) SIZE: Up to 1/6 in (4 mm) FAMILY: Pulicidae HABITAT: Near rats, their primary food source DISTRIBUTION: Worldwide, particularly tropical and subtropical climates, but some temperate zones as well MEET THE RELATIVES: The cat flea, Ctenocephalides felis, is a relative, as is the dog flea C. can is—but in the […]
Toaster ovens are the perfect appliance for small things like toasted sandwiches and roasted garlic (try it!), but anything more involved usually requires a full-sized conventional oven.However, despite its small size, the Wolfgang Puck Pressure Oven can handle anything from baked pastries to broiled meats. This kitchen appliance has a minimal countertop footprint, and cooks […]
The Pry.Me Bottle Opener holds tens of thousands of times its own weight, and you can pick one up now from the Boing Boing Store.This remarkable keychain is considerably smaller than any of your keys, but don’t let that fool you: it can easily open any bottle, and could even tow a trailer full of […]
Guaranteeing your privacy online goes way beyond checking the “Do Not Track” option in your browser’s settings. To ensure that your internet activity is totally hidden from Internet Service Providers, advertisers, and other prying eyes, take a look at Windscribe’s VPN protection. It usually costs $7.50 per month, but you can get a 3-year subscription […]