I met Jimmy Lin last year at TED. He's a research instructor at Washington University in St. Louis and founder of the Rare Genomics Institute, a "non-profit that makes cutting edge research technologies and experts accessible to rare disease patients." Today, Jimmy announced a rare disease competition for the best research proposal. He says:
Today, Rare Genomics Institute and Assay Depot announced an innovative international contest to catalyze rare disease research. Rare diseases affect over 250 million people worldwide, yet less than five percent of the 7,000 known rare diseases have any therapy. We have gathered 19 companies to donate $400,000 worth of cutting edge technology, services, and cash. Our hope is that this will encourage non-profits, academic researchers, rare disease advocacy groups, families of rare disease patients and for-profit companies to collaborate to advance rare disease research. In addition to expert scientific review, we will also be awarding a $10,000 prize for the best idea that will be determined by Facebook voting.
Assay Depot and Rare Genomics Institute Unite 19 Life Science Companies to Launch a Rare Disease Research Competition
Previously on Boing Boing: Crowdfunding rare disease research – one family at a time
Gabriella Corley is a 9 year old with Type I diabetes who’s allergic to the insulin covered by her low-income parents’ healthcare; to live, she must take Sanofi’s proprietary Apidra brand insulin, which has increased in price by 1,123% since 1996, and which is only covered to 25% by her insurer’s Pharmacy Benefit Manager, CVS.
Activated charcoal makes for some cool-looking chow, like the superblack soft-serve at LA’s Little Damage, and you might think that since activated charcoal is given to people with acute poisoning, it’s safe to eat.
Every dollar that the Trump administration takes away from Planned Parenthood in Maryland will be replaced by state funds (about $2.7M), which will save about $6 for every dollar it puts in, because when women are in charge of their own fertility, they don’t end up raising kids they can’t afford.
Bamboo has lots of uses beyond just being panda food. Things like bikes, roads, scaffolding, and musical instruments are made from the fast-growing grass. But unless you are participating in a tropical-themed LARP, you probably wouldn’t want a shirt made from bamboo stalks. So why do bamboo bed sheets make any sense? Because yarn extracted from […]
If you want to work in tech, but don’t have any desire to code web apps to help businesses sell things to other business, you might want to consider a career in cybersecurity. Judging from the apparent complete infiltration of Russian hackers in American cyberspace, it seems fair to speculate that there’s a major shortage of […]
All moms are different. But all moms like getting flowers on Mother’s Day, and that’s a fact (not, however a fact we can document in any fashion.) Instead of getting chewed out for forgetting to call her on the second Sunday of May, you can take care of it ahead of time with Teleflora’s flower […]