I met Jimmy Lin last year at TED. He's a research instructor at Washington University in St. Louis and founder of the Rare Genomics Institute, a "non-profit that makes cutting edge research technologies and experts accessible to rare disease patients." Today, Jimmy announced a rare disease competition for the best research proposal. He says:
Today, Rare Genomics Institute and Assay Depot announced an innovative international contest to catalyze rare disease research. Rare diseases affect over 250 million people worldwide, yet less than five percent of the 7,000 known rare diseases have any therapy. We have gathered 19 companies to donate $400,000 worth of cutting edge technology, services, and cash. Our hope is that this will encourage non-profits, academic researchers, rare disease advocacy groups, families of rare disease patients and for-profit companies to collaborate to advance rare disease research. In addition to expert scientific review, we will also be awarding a $10,000 prize for the best idea that will be determined by Facebook voting.
Deflazacort, a steroid, can be purchased online from non-US sources for $1.00, but now it’s being marketed by Illinois’s Marathon Pharmaceuticals for $89,000 as Emflaza, to treat Duchenne muscular dystrophy, which predominantly affects men in their 20s.
Although there will never be a consensus about the best way to make coffee, any coffee connoisseur will agree that controlling the grind of your beans and balancing water temperature are the keys to a tasty cup. Since your plastic coffee pot doesn’t really allow for that kind of customization, going back to the French […]
Not all hackers are malicious information thieves—white-hat ethical hackers work with technology companies to ensure the security of their computer systems and user data. With all of today’s high-profile data breaches, ethical hackers are in considerable demand. To learn these critical skills and break into the high-paying cyber security field, try taking the courses in this […]
Making people aware of goods and services in the digital age requires an array of new strategies from social media and email to number-crunching tools like Google Analytics. To get a handle on the techniques used to capture attention and convert traffic into dollars in a crowded online environment, the Full-Stack Marketer Bundle offers 22 hours of training to get […]