#BCSM's Jody Schoger (L) and Alicia Staley (R) tweet and blog in Dr. Deanna Attai's Burbank, CA office. Photo: Robert Hanashiro, USA TODAY.
I'm very happy to see the wonderful #BCSM Twitter community receive some well-deserved attention in the form of a USA Today article this week
. Through this group, which holds a weekly chat session on Monday evenings, I met some amazing women with breast cancer. I also met medical professionals who expanded my knowledge of the disease—and, how to survive the hell that is treatment. BCSM stands for "breast cancer social media," but people with other forms of cancer have used it as a model for conducting weekly chats and maintaining a kind of "bat-signal" for people with a given form of the disease. BTSM, for people with brain tumors, comes to mind. With each of these communities, you just include the hashtag in a tweet, and your cancer compatriots reply. It's hard to wrap your head around how vital this is unless you actually have cancer, but I see people using that hashtag all the time when they're in crisis, to receive a kind of comfort from the isolation that bad cancer-news brings. For instance, learning in a routine oncology checkup that their cancer has returned, and is now an incurable stage IV.
Snip from Liz Szabo's USA Today profile:
In most support groups, "one or two patients sort of take over, and it turns into a bitch session," Attai says. "That's not what you see with #BCSM. ... We have a common goal -- that's to educate, empower and support, and all that participate seem to embrace that."
Schoger says she's been pleased to see how BCSM helps women -- and the occasional man -- think through complex issues and become leaders.
"So many of these women are writing stronger blog pieces and are taking up the mantle in different breast cancer organizations," Schoger says. "I just love watching it."
Read the whole article.
I never went to an in-person support group during my primary treatment for breast cancer, but BCSM, and the informal mentoring relationships that developed out of it, were vital to me during the past year. So much so that it's hard for me to imagine what it would have been like to have had my first experience with cancer in a time when Twitter, and BCSM, did not exist.
Thank you, founding women of BCSM.
There’s a widespread understanding that the vaccine-autism link and climate denial are bullshit, but there are plenty of widespread science myths that are repeated by people who should know better, from the idea that early screening lowers cancer mortality to the idea that the human population is growing exponentially.
Martin Shkreli, the hedge-fund douche-bro who hiked the price of an off-patent drug used by AIDS and cancer patients from $13.50 to $750, then promised to lower the prices after becoming the Most Hated Man on the Internet did no such thing, because he is a liar.
The UK’s NHS’s National Institute for Health Research announced it will embark on a 12-year study involving 11,000 patients to study the effects of aspirin on different types of cancer. From Motherboard: It’s not the first time scientists have looked into whether aspirin could help stave off cancer. One 2012 study that found that a […]
Light used to just be one of two things: on or off. Simple as that. Either a flood of yellow or total darkness. Then the dimmer switch happened and you could adjust the brightness to meet your seductive needs and suddenly everyone looked a little better in the gentler light. And now your luminary universe […]
Projects will always need management. And now with the tech gold rush it feels like there are more projects than ever with fewer managers than there’s demand for. But it takes too much time and money to go back to school full time so luckily the Project Management Professional certification training course is now 96% […]
If you’ve been blessed enough to avoid them yourself, you’ve definitely heard the horror stories. Late night, crushing out a ton of work, writing, coding, anything, then boom – your computer crashes. The battery blows, you spill water or coffee all over the place, or it just shuts down with no explanation, and you’re screwed. […]