"Once lymphedema develops, it is permanent," says my friend Dr. Deanna Attai, a breast surgeon in Burbank, CA. "Physical therapy can help minimize swelling and other complications, but there is currently no cure. Early recognition and prompt treatment definitely makes a difference."
Dr. Attai points me to news that Stanford University has opened a national registry study to gather information from breast cancer patients with and without lymphedema. "The goal is to gain information on what type of monitoring is being performed and how that might impact outcomes," she explains. More here and here.
I'll be enrolling, for sure—I'm at high risk, personally, because of the specifics of my treatment. If you or a loved one has breast cancer and meets the study criteria, pass it on.
Boing Boing editor/partner and tech culture journalist Xeni Jardin hosts and produces Boing Boing's in-flight TV channel on Virgin America airlines (#10 on the dial), and writes about living with breast cancer. Diagnosed in 2011. @xeni on Twitter. email: firstname.lastname@example.org.