Comments on: Medical fundraiser for sf writer Jay Lake

By: Mary Robinette Kowal

Mary Robinette Kowal — Sat, 12 Jan 2013 04:56:00 +0000

I’m happy to report that Paypal unlocked the account, apologized, and donated to Jay’s fundraiser.

http://techcrunch.com/2013/01/11/paypal-jay-lake-apology/

By: BillStewart2012

BillStewart2012 — Sat, 12 Jan 2013 01:52:00 +0000

Apparently PayPal is blocking the funds for Jay? https://www.facebook.com/jay.lake.967/posts/10151439399835649
Does anybody have connections with PayPal to get them to release the money quickly instead of taking a long time, which Jay doesn’t have?

By: BillStewart2012

BillStewart2012 — Sat, 12 Jan 2013 01:13:00 +0000

Thanks to you, and Neal, and the others doing this fundraiser!

By: Mary Robinette Kowal

Mary Robinette Kowal — Fri, 11 Jan 2013 22:59:00 +0000

There is. That’s one of the reasons we went with this website. The funds are transferred to Jay immediately. He has surgery scheduled already.

We set our funding goal at the bare minimum needed, but there are still other expenses that his insurance won’t cover.

By: BillStewart2012

BillStewart2012 — Fri, 11 Jan 2013 19:43:00 +0000

Wow – they’ve hit their initial goal and are well into the stretch goals, with 33 days left on the fundraiser. I hope there’s some mechanism for them to get started with the sequencing immediately, rather than waiting until their 33 days are left?

By: Neill "Dire" Mitchell

Neill "Dire" Mitchell — Fri, 11 Jan 2013 12:44:00 +0000

I would suggest approaching those chasing the X-Prize - http://en.wikipedia.org/wiki/Archon_Genomics_X_PRIZE –

One such company sequenced Gordon Moore a few years back – http://www.nature.com/nature/journal/v475/n7356/full/nature10242.html

By: invictus

invictus — Thu, 10 Jan 2013 20:39:00 +0000

If I’m reading your comment correctly, you are viewing the “recommendation” of a drug not normally used for the purpose as a bug, not a feature. I believe this is a point Jay addressed in a recent blog post.

“Basically, the concept is that not all cancers have the same genetic signature as implied by their presentation. In other words, a cancer which is phenotypically colon cancer might actually be liver cancer genetically. Since cancer drugs for the most part target genetic signatures, establishing that my cancer did not conform to colon cancer’s template would indicate a different course of treatment normally appropriate for the cancer that it is more closely genetically aligned with. As my cancer has been rather idiosyncratic in both its presentations and its response to treatment, this is not an unreasonable thing to check for.”
–Jlake.com

By: adam

adam — Thu, 10 Jan 2013 20:16:00 +0000

Whole genome sequencing as a method of selecting ones next anti cancer agent is best considered an experimental approach both as a strategy in of itself, but it may also ‘recommend’ a drug not usually/ever used in metastatic colon cancer. I would therefore only recommend this approach in the context of a properly run clinical trial.

By: Mary Robinette Kowal

Mary Robinette Kowal — Thu, 10 Jan 2013 19:32:00 +0000

Thanks, Cory