Michelle Langbehn. Photo: Natural Grace Photography, via Washington Post
Michelle Langbehn has a rare form of cancer that affects about 1% of U.S. cancer patients. She was diagnosed in April 2012, shortly after giving birth to her daughter. She was 29.
She spoke to the Washington Post about how the government shutdown has affected her. The short version: she can't get the life-saving treatment she needs; a clinical trial that provides an option in a case where other more well-established treatment protocols have failed.
The Washington Post's Sarah Kliff explains:
After nine months of chemotherapy, she and her doctor began looking into other potential treatment options, including a trial at the National Institutes of Health. Langbehn began filling out the paperwork to apply last month. Things were going well until late September, when she got a call from the NIH: If the government shut down, the trial would not accept new patients. Now, she is among an estimated 200 patients turned away each week from clinical trials there. Langbehn has started a petition asking the government to re-open the treatment option.
“This was not supposed to happen. Nobody wanted the shutdown to happen," says Langbehn. "If I had a message, it would be that lives are at stake.”
“This is a matter of life or death. I’m not just doing this for myself. There are 200 people that are trying to get into clinical trials each week. I want to speak for all of us.”
"People don’t want to be enrolled because they're doing well," Langbehn says. "They’re looking because of something that's wrong. For them to have that taken away, it almost makes you want to lose hope in a way."
Related Boing Boing posts:
• "US gov shutdown may mean some kids with cancer won't be treated, CDC's outbreak detection programs also halted"
• "Meet two cancer patients whose treatment is on hold due to US gov shutdown: an 8yo girl, and a father of 3"
There’s a widespread understanding that the vaccine-autism link and climate denial are bullshit, but there are plenty of widespread science myths that are repeated by people who should know better, from the idea that early screening lowers cancer mortality to the idea that the human population is growing exponentially.
Martin Shkreli, the hedge-fund douche-bro who hiked the price of an off-patent drug used by AIDS and cancer patients from $13.50 to $750, then promised to lower the prices after becoming the Most Hated Man on the Internet did no such thing, because he is a liar.
The UK’s NHS’s National Institute for Health Research announced it will embark on a 12-year study involving 11,000 patients to study the effects of aspirin on different types of cancer. From Motherboard: It’s not the first time scientists have looked into whether aspirin could help stave off cancer. One 2012 study that found that a […]
Isn’t it about time to stretch what your Mac can do? I mean, you’ve got plenty of great programs now…but don’t you think you could use some new tools to get your creative, analytical and organizational juices really flowing? It’s spring, so we cleaned up a whole bunch of super-cool apps lying around and packaged […]
In the world of app development, there’s no greater arena to find success than with Android users. About 80% of the smartphones in use today worldwide operate on the Android operating system, so if you build a great app that Android users love, you’re an international rock star. You’ll be able to make sure your […]
Unless you’re a programmer or webmaster, the term SQL probably doesn’t mean much to you. But for those looking to understand more about how and why the web works the way that it does, know this – SQL and its process of managing and presenting large data sets is everywhere…and it’s the most in-demand programming […]