If you're at SXSW in Austin, Texas today, do come by the Hilton Level 6 Salon F room at 330pm today (Monday March 10, 2014) for a panel on #BCSM (Breast Cancer Social Media), which I'll be moderating. The video here explains a little of the story behind #BCSM, but the short version is that it's a wonderful online community for people like me who have breast cancer, founded and maintained by women with breast cancer and a health care provider who treats people like us.
Panelists: Alicia Staley, Jody Schoger, and Deanna Attai, the women who created #BCSM.
On Independence Day 2011, the first-ever #BCSM tweetchat for those affected by breast cancer took place. Less than two years later, the group had attracted thousands of participants, spawned a website and a YouTube channel and earned an extensive feature in USA Today. Not bad for a group of tech novices in a space hardly wanting for pink-ribboned advocates.
More info about the panel
#BCSM isn't a prototypical breast cancer organization. It's not your usual support group. And it's not the kind of online community that makes headlines at Mashable.
Instead, the group has been, since its founding, focused on attracting a diverse and inclusive group who shared not only cancer, but a set of shared values -- particularly a commitment to evidence -- that created a sense of authority even as it built community.
Those are lessons that can and should be adopted by those looking to connect with similarly isolated communities, and the founders of #BCSM look forward to sharing what they have learned.
David Robinson used the data from the 28,657 people who self-selected to take the Stack Overflow survey to investigate the relationship between programmer pay and the conventions of using either tabs or spaces to mark indents, and found a persistent, significant correlation between using spaces and bringing home higher pay.
It’s the end of an era, sort of: Fraunhofer IIS, the developers of the MP3 audio compression format, announced that they are ceasing their licensing program. In a blog post, spokesman Matthias Rose says that it’s had a good 20-year run and is obsolete. But it’s also true that the decoding patents expired last year, […]
Freddy deBoer writes that he’s been telling the same joke for years about Silicon Valley’s only product, which might be universalized as “At last, a way to verb with nouns on the internet!” But the social-media techopoly is stable, now, and so the venture capitalists have moved on to the three terrible trends that will […]
If you struggle to get a good night’s rest, consider replacing your pillows before dropping hundreds on a new mattress. You can give your tired neck a break with a 2-pack of memory foam pillows, available now in the Boing Boing Store.Each of these pillows is stuffed with cooling polyurethane foam that molds to your […]
Although flagship smartphones are unlikely to adopt heavy-duty outer casing anytime soon, you can always prepare your device for the outdoors with a beefy case and and an external battery like this Nomad Tile Trackable PowerPack, available in the Boing Boing Store for $119.95.The Nomad Tile can fully recharge an iPhone 7 over three times […]
Even though credit cards now feature an EMV chip for securing transactions, they still have to include the magnetic strip for compatibility with older point of sale systems. Because of this, there’s no way for the chip’s new security capabilities to protect against card skimmers in the wild.How do you protect yourself from legacy-technology-induced fraud? […]