Lessons from a brain tumor diagnosis

Jeff writes, "I received my diagnosis late on Friday afternoon of what would be a very long weekend. I had really hoped to avoid brain surgery in my life."

And not surprisingly, moments of the next four days would be intermittently terrifying and poignant. Seeing my tumor on the MRI, I quickly realized that my treatment specifics and outcome would depend mostly on its position, size and what vital areas it had grown around and into thus far. I chose not to Google much. I wouldn't learn more until meeting with a neurosurgeon the following Tuesday morning.

What We Can Learn From My Brain Tumor [Jeff Reifman]

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  1. I very much enjoyed reading this. Thank you.

  2. Having received the news of a similar benign brain tumor 24 years ago (and subsequently cut out of me in 8+ hours of surgery) and having two years ago had it's - found by pure chance while checking something else - successor burned to a crisp with a Gamma Knife (EDIT: "Cyber Blade" was wrong), I found the text rather too preachy for my taste.

    The whole "What we can learn from my turmor" really rubbed me the wrong way. What "we" can learn? "We" can learn that everyone has to deal with it on his/her own. Other people will be shocked, helpful, useless, supportive or any variation and combination thereof. Other people might actually be more shaken than you yourself are. Your parents and partners for example. People will cry a lot. It get's better. Life goes on. Sure, it might change some of your priorities and general outlook on life, but it also may not. It's a very specific and very individual thing to go through.

  3. LDoBe says:
    I chose not to Google much. I wouldn't learn more until meeting with a neurosurgeon the following Tuesday morning.

    Best advice ever. Of several ailments that I've had, it always turns out that googling only makes things worse for the serious ones, and google university is a shitty, unaccredited institution.

  4. LDoBe says:

    Point being: Knowledge isn't bad, it's just that the internet is very unreliable, and you're better off getting your information from people who went to 8+ years of medical school plus continuing education, than you are getting your info from some crank yammering about how "toxins" are "sapping" our "precious bodily fluids",

    It can be very difficult to figure out what's real and what's bullshit on the web. Even if you restrict yourself to peer reviewed articles, there's a lot that's accepted due to institutional laziness, and the need for a journal to pad it's length, or even a bunch of vanity journals publishing anyone who pays a fee.... Ugh, disgusting.

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