Charlie Morgan, a 47-year-old career soldier in the late stages of metastatic breast cancer, says she hopes to live long enough to see the federal Defense of Marriage Act (DOMA) overturned, so that her wife will receive the benefits that a widow in a hetero couple would receive. “I’m praying that they take it up soon,” Morgan told the Washington Post in a phone interview
from her home in New Durham, NH “It’s my motivation for staying alive. I really need to be alive when they actually do overturn DOMA, otherwise Karen is not guaranteed anything.” Read the rest here
. — Xeni
Why are women first to pay for every crisis? In every society, capitalist, socialist, or transition? It's because the bodies of women are expendable.
I always noticed how women over eighty in Turin looked incredibly well, beautiful and loved and taken care of: desirable, because old and valuable. I connected this to Italy's long-established and sophisticated health care system. Italian hospitals were famous for methods which preserved the dignity of the patients, in tumor cures, especially breast cancer: the "invisible mastectomy" was invented in Milan. Rather than simply intervening in crisis, they were good at illness prevention and attentive follow-ups.
The economic crisis and financial harassment of Italy has reached this safe haven of health and dignity. In Turin, one of the best clinics for cure and prevention of breast cancer is about to be closed. The patients are on the streets, their appointments cannot be scheduled, they are paying for their urgent operations because their doctors cannot help them. The doctors are on the streets too.
Read the rest
Oncologist and cancer-woo-debunker Orac has more on the legal details that allow this man to keep practicing medicine in Texas: "the dubious doctor known as Stanislaw Burzynski, who charges desperate patients with advanced (and usually incurable) cancer tens and even hundreds of thousands of dollars to participate in his 'clinical trials' of antineoplastons, compounds that he claims to have isolated from urine and that he now represents as a promising new treatment that can do much better than existing therapies with much less toxicity, even though there’s no evidence that it can."
The Texas Medical Board has abandoned its prosecution of Burzynski, as noted in a previous Boing Boing post here with guest commentary by fellow anti-cancer-woo writer Robert Blaskiewicz.
The legal underpinnings of the case will be interesting to some, and too tedious for others, but here's the tl;dr from Orac's post: the outcome does not make the case that Burzynski's "science" is valid. The board simply found that, "as a matter of law, the TMB couldn’t bring action against Burzynski on the basis of actions performed by doctors under his supervision."
Read the rest
As regular readers of this blog know, cancer quackery
is a topic relevant to my interests
as a cancer patient.
Robert Blaskiewicz has written extensively about the epic quackery of one of the most well-known "cancer cure" promosters, Stanislaw Burzynski (left).
The Texas-based "alternative cure practitioner" fails to liberate patients from cancer, but has a remarkable talent for liberating them from their money.
Today, Blaskiewicz shares an update on the Texas Medical Board's long-running prosecution of Burzynski.
The short version: He's free to continue exploiting cancer patients there.
Come to think of it, a ham sandwich could probably get a medical license in Texas, these days.
Read the rest
As I said to cancer pals on Twitter earlier today, if my loved ones arrange a funeral for me where everyone is dressed like this, I swear unto you that I will come back from the dead and stab everyone in the face. (via @regrounding)
, guest contributor and cancer-scam-debunker Bob Blaskiewicz
has written a piece about Houston-based Stanislaw Burzynski
(photo at left). Burzynski's advocates would like you to believe is a persecuted savior of cancer patients who holds the key to a cure that Big Pharma and the FDA want to suppress.
"An important sign of quackery is the depiction of the doctor as a lone genius fighting against special interests trying to suppress crusading work," writes Blaskiewicz— but Burzynski's associates appear to be engaging in suppression, themselves. Blaskiewicz writes about the "thuggery of some of his supporters (which included the creation of a website at the same IP as burzynskipatientgroup.org that defamed numerous skeptics, myself included, as pederasts)" to distract from Burzynski's decades-long failure to produce "a single convincing study" about his treatment's efficacy.
Here at Boing Boing, Cory has written about their history of legal threats to online critics, and scientists' debunking of their trials.
While Burzynski fails to liberate his patients from cancer, he has a remarkable talent for liberating them from their money.
Read the rest
So-called "rogue surgeon" Ian Paterson has been suspended by Britain's General Medical Council after accusations he performed "unnecessary or inappropriate" breast operations on over a thousand women in the UK.
Investigators claim he misdiagnosed at least 450 of those women with breast cancer when they were in fact cancer-free, performing unnecessary mastectomies and lumpectomies, and placing them on brutal treatment regimens when they had no cancer to treat.
Read the rest
occurs in about 7% of breast cancer patients who have undergone sentinel lymph node biopsy (to see if disease has spread to these lymph nodes), and in greater percentage of patients whose nodes end up being removed (because one or more contain cancer) and patients who receive radiation therapy after breast surgery. Lymphedema is basically a chronic swelling of the affected arm, caused by trapped lymph fluid. It can be disabling, disfiguring, and extremely painful.
"Once lymphedema develops, it is permanent," says my friend Dr. Deanna Attai, a breast surgeon in Burbank, CA. "Physical therapy can help minimize swelling and other complications, but there is currently no cure. Early recognition and prompt treatment definitely makes a difference."
Read the rest
A wonderful article by Liz Szabo in USA Today on "I heart boobies," "save the ta-tas," and all those other horrible sexualized breast cancer campaigns that raise dubious funds for dubious goals and leave those of us who have the disease feeling demeaned. There is nothing sexy about breast cancer, and Szabo does a fantastic job in this piece explaining why. Above, one of the worst such campaigns I have ever seen.
Read the rest
In the NYT today, a report on the plight of cancer patients in Greece
who cannot afford treatment. The profile of a woman with breast cancer who delayed medical care for lack of funds is gruesome, and similar to stories one hears in the United States
. [BB: breast cancer archives
] — Xeni
The tl;dr: If a medical study seems too good to be true, it probably is. Eryn Brown in the Los Angeles Times writes about
a statistical analysis of nearly 230,000 trials compiled from a variety of disciplines, published today in the Journal of the American Medical Association. The analysis by Stanford's Dr. John Ioannidis and a team of fellow researchers looked at study results claiming a "very large effect," and found that those claims seldom ended up being true when other research teams tried to repeat the same results.
One such example: the cancer drug Avastin. Clinical trials suggested the drug might double the time breast cancer patients could live with their disease without getting worse. But follow-up studies found no improvements in progression-free survival, overall survival or patients' quality of life. As a result, the U.S. Food and Drug Administration in 2011 withdrew its approval to use the drug to treat breast cancer, though it is still approved to treat several other types of cancer.
With early glowing reports, Ioannidis said, "one should be cautious and wait for a better trial."
Read the full LAT article. Here's the JAMA paper, but you have to be a paid subscriber to read it.
#BCSM's Jody Schoger (L) and Alicia Staley (R) tweet and blog in Dr. Deanna Attai's Burbank, CA office. Photo: Robert Hanashiro, USA TODAY.
I'm very happy to see the wonderful #BCSM Twitter community receive some well-deserved attention in the form of a USA Today article this week
. Through this group, which holds a weekly chat session on Monday evenings, I met some amazing women with breast cancer. I also met medical professionals who expanded my knowledge of the disease—and, how to survive the hell that is treatment. BCSM stands for "breast cancer social media," but people with other forms of cancer have used it as a model for conducting weekly chats and maintaining a kind of "bat-signal" for people with a given form of the disease. BTSM, for people with brain tumors, comes to mind. With each of these communities, you just include the hashtag in a tweet, and your cancer compatriots reply. It's hard to wrap your head around how vital this is unless you actually have cancer, but I see people using that hashtag all the time when they're in crisis, to receive a kind of comfort from the isolation that bad cancer-news brings. For instance, learning in a routine oncology checkup that their cancer has returned, and is now an incurable stage IV.
Snip from Liz Szabo's USA Today profile:
Read the rest
that New York state attorney general Eric T. Schneiderman’s office did a year-long review of the so-called “pink ribbon” business, which I loathe almost as much as I loathe breast cancer itself. They came up with five guidelines intended to protect consumers. — Xeni
I recently wrote about
a meaningful gift I received from my friend Michael Pusateri, at the end of my primary treatment for breast cancer: this wonderful medal
. So, today, Michael explains how to order one yourself
. Give one to a cancer patient in your life! It's a really cool way to recognize what can be a confusing, ambiguous, strangely depressing milestone. Before all the "what's next" and "what if" thoughts take over, taking a moment to acknowledge the importance of that milestone is really beautiful. — Xeni