The family of Henrietta Lacks — a woman whose cervical cancer cells were harvested and used in scientific research for decades without her knowledge or consent — will now play a role in deciding who has access to the Lacks' cell genome data, and for what purposes. There are loopholes in the new system. For instance, the agreement only applies to scientists who receive National Institutes of Health funding. And the genome of the cells has been sequenced so many times, at this point, that anybody who wasn't NIH funded and didn't want to voluntarily abide by the agreement essentially wouldn't have to.
But it is a big step forward, both for the Lacks family (whose own genetic information is contained in those genome sequences) and for the idea that human genetic information belongs to the people it comes from — not to whoever happens to sequence it.
The happy selfie posted here features NIH director Francis Collins posing with some of Henrietta Lacks' descendants after the agreement was announced.
Scientists drilled into the Chixclub crater in the Gulf of Mexico to learn more about the end of the mesozoic era. They learned more than they expected, reports Katherine Kornei in The New York Times. The first day of the Cenozoic was peppered with cataclysms. When the asteroid struck, it temporarily carved a hole 60 […]
Get over it! Despite the mockers and complainers, and even attempts to make it illegal to perambulate while looking at your own damned phone, science concludes that the risks of it are negligible. As part of the mandated study, the DOT conducted an in-depth review of written crash narratives in the city between 2014 and […]
Typically, marine photography is done in rich, saturated color — the better to show off the riot of life beneath the waves. But the photographer Christian Vizl has done it in high-contrast black and white, producing eerily intense ways of re-seeing marine life. You can see the work on his site, and in his new […]
On the one hand, nostalgia is “a corruption of the historical impulse,” according to William Gibson. On the other hand, “Super Mario Bros.” will never not be cool. Luckily, there’s a way to satisfy that retro gaming while still keeping an eye on the future: The GameShell Kit. This thing is simultaneously the last handheld […]
The field of data analytics can get intimidating, even for business professionals who constantly rely on it. But at its heart, its purpose is to simplify. To take mounds of information and distill their insights into a single clear picture. Currently, the go-to software for painting that picture is Tableau. And if you want to […]
If you’re in the market for a stable, durable camera fully suited for first-person video, there’s a good chance that you’re the adventurous type. So why settle on a familiar name like GoPro? The DJI Osmo Action 4K HDR Camera checks off all the same boxes on the action cam checklist as the GoPro 4K […]