Janet says, "Despite what the official statistics say, metastatic (stage IV) lung cancer is NOT an automatic death sentence. Newer therapies and personalized medicine now offer such patients months or even years of quality time to spend enjoying family, friends, hobbies, even travel and work. Yet insurance companies and doomsday doctors still tell many patients there's no point in pursuing further treatment. I'm an engineer, a writer, and a stage IV lung cancer patient, and I received a letter from my insurance company [ed: Blue Cross Blue Shield of Illinois] saying there was no need for me to have another biopsy because I was going to die anyway. This blog post is my response to that letter."
I was lucky to have enough slides from a 2011 biopsy to have the University of Colorado test my tumor for the relatively new ROS1 genetic mutation in my tumor tissue. Because I tested positive for ROS1, I was able to enter a clinical trial for the targeted therapy crizotinib, a drug which inhibits my ROS1-driven cancer. The trial treatment eliminated both nodules and has given me No Evidence of Disease Status for five months. I am once again able to enjoy traveling, writing, and doing things with my family. If I had not had leftover biopsy slides, an EMN biopsy would have been my only opportunity to obtain enough tissue to test for ROS1. Without that ROS1 trial and crizotinib, I might be dead by now.
Doctors who don’t keep current on new treatment options and then decide a biopsy “is not going to affect long-term health outcomes” for metastatic lung cancer patients are insuring those patients will die sooner rather than later.
That’s not the kind of health insurance I want. Do you?
Insuring the Terminal Patient
In July 2012, professional poker-player Phil Ivey won $4.8M from the baccarat tables at Atlantic City’s Borgata Hotel Casino & Spa in 17 hours; on other occasions, he took a total of $9M out of the Borgata: he did it by asking the house to deal Gemaco Borgata cards, whose backs contained minute asymmetries in […]
The five Volkswagen executives who were criminally charged in the USA for their role in the Dieselgate scandal have been advised not to travel to the USA because they are liable to arrest there: they’ve also been told that leaving Germany is risky because they might be arrested and extradited to the USA.
When you open the box for a Storm Trooper snuggie blanket, you’ll discover a card telling you that by buying the blanket, you’ve waived your right to sue the manufacturer and will subject yourself to binding arbitration if your blanket gives you cancer or burns you to death or any of the other bad things […]
Computer hacking isn’t just something happening to the DNC. Major software companies need white-hat hackers to ensure the security of their products and users, and I came across a Computer Hacker Professional Certification Package that conveniently teaches those advanced IT techniques online.This course package will prepare you for various computer security certification exams with over 60 hours […]
One of the best ways to progress a career in project management is through earning recognized certifications. These certifications carry significant clout and don’t require expensive tuition or student loans. This Ultimate Project Management Certification Bundle is a great example of an affordable way to get ahead. It includes training for 9 certifications including PMP, […]
There’s nothing quite like the rush of playing against a real human opponent. But from a developer standpoint, creating fun multiplayer experiences is incredibly complex. Fortunately, the Unity3D game engine has made all aspects of game creation, including multiplayer functionality, as accessible as ever.This Unity Course Bundle introduces all of the necessary elements of creating […]