Janet says, "Despite what the official statistics say, metastatic (stage IV) lung cancer is NOT an automatic death sentence. Newer therapies and personalized medicine now offer such patients months or even years of quality time to spend enjoying family, friends, hobbies, even travel and work. Yet insurance companies and doomsday doctors still tell many patients there's no point in pursuing further treatment. I'm an engineer, a writer, and a stage IV lung cancer patient, and I received a letter from my insurance company [ed: Blue Cross Blue Shield of Illinois] saying there was no need for me to have another biopsy because I was going to die anyway. This blog post is my response to that letter."
I was lucky to have enough slides from a 2011 biopsy to have the University of Colorado test my tumor for the relatively new ROS1 genetic mutation in my tumor tissue. Because I tested positive for ROS1, I was able to enter a clinical trial for the targeted therapy crizotinib, a drug which inhibits my ROS1-driven cancer. The trial treatment eliminated both nodules and has given me No Evidence of Disease Status for five months. I am once again able to enjoy traveling, writing, and doing things with my family. If I had not had leftover biopsy slides, an EMN biopsy would have been my only opportunity to obtain enough tissue to test for ROS1. Without that ROS1 trial and crizotinib, I might be dead by now.
Doctors who don’t keep current on new treatment options and then decide a biopsy “is not going to affect long-term health outcomes” for metastatic lung cancer patients are insuring those patients will die sooner rather than later.
That’s not the kind of health insurance I want. Do you?
Insuring the Terminal Patient
Philips has acquired Luciom, a French startup that makes Li-Fi products, which allow for very fast network connections over short distances by flickering an LED at speeds that are too fast to register on the human eye, and which can ever work in the dark by operating at low dimness settings the human eye perceives […]
Many insurers offer breaks to people who wear activity trackers that gather data on them; as Cathy “Mathbabe” O’Neil points out, the allegedly “anonymized’ data-collection is trivial to re-identify (so this data might be used against you), and, more broadly, the real business model for this data isn’t improving your health outcomes — it’s dividing […]
As the US government ramps up its insistence that visitors (and US citizens) unlock their devices and provide their social media accounts, the solution have run the gamut from extreme technological caution, abandoning mobile devices while traveling, or asking the government to rethink its policy. But Maciej Cegłowski has another solution: a “travel mode” for […]
DJI is the world’s leading designer and producer of easy-to-fly drones and aerial photography systems. If you’re a drone enthusiast, you want a DJI. If you know absolutely nothing about drones and think they’re weird, if you win a DJI you’re going to become a drone enthusiast.Enter this giveaway (for free, yes) and you’ll get a […]
Although there will never be a consensus about the best way to make coffee, any coffee connoisseur will agree that controlling the grind of your beans and balancing water temperature are the keys to a tasty cup. Since your plastic coffee pot doesn’t really allow for that kind of customization, going back to the French […]