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On quack cancer cures, and "alternative medicine" as religion

I loved Science Blogs contributor Orac before I was diagnosed with cancer. I love him a whole lot more now. I'll get to why in a moment, but I want to share something personal first (cracks knuckles).

Well-meaning friends have suggested I try coffee enemas and Burzynskian "antineoplastons" and oxygen therapy to cure my breast cancer; others have told me the reason some of my cells went mutinous is because I offended the Great Invisible Beardy Man in the Sky.

Dude, I've heard it all.

I am active on Twitter in talking about cancer, sharing the experience of my treatment (which fucking sucks), and connecting with fellow persons with cancer.

One of those fellow travelers yesterday tweeted this link, which praises the work of "ND" Judy Seeger. In alternative healing parlance, ND stands for naturopathic doctor. I like Orac's definition better: "not a doctor."

Let me be blunt: I think people who sell fake cancer cures are murderers.

I spoke about the content of that blog post with my radiation oncologist yesterday, after I lay down under the linear accelerator for another daily (yep, daily) blast of rays to kill any remaining lurking cells that might want to off me a few years down the road.

I hate radiation treatment, by the way. HATE IT. But I hate cancer more.

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A Mary Blair Treasury of Golden Books


Mary Blair is best know as a Disney illustrator, whose modernist, stylized illustrations formed the basis for the It's a Small World ride and facade, as well as several of the best-loved murals in the parks. But she also worked as a general commercial illustrator, producing a good sheaf of advertising work as well as five illustrated Golden Books.


A Mary Blair Treasury of Golden Books, a new volume, collects these books in one absolutely essential volume. Blair's work is always fantastic, but you couldn't ask for a better showcase than her book-illustration portfolio. One of the anthologized titles is I Can Fly, written by Ruth Krauss, which won the Picture Book Honor at the 1951 New York Tribune Children's Spring Book Festival, but each one of these is worthy of an illustration award, and collectively they showcase both her breadth and the unity of her vision.

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Michael J Nelson on MST3K and the heavily anticipated return of Manos: The Hands of Fate, and RiffTrax

In a sure sign that our dreams are really coming true, Manos: The Hands of Fate is returning to movie theaters for all of us to experience on the big screen. No, this won't be the restoration you've been hearing about -- it's the next RiffTrax Live event, and for the first time, the riffers and stars of Mystery Science Theater 3000 Michael J. Nelson, Kevin Murphy, and Bill Corbett will be revisiting a classic movie from the show in front of a live audience this Thursday night at 8:00 PM (EST). I spoke with Nelson about Manos and the mission to restore it, as well as MST3K, RiffTrax, and potential future riffs and live events.

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Real history from a pretend pirate

Meet Richard Nolan: quartermaster of the Whydah, captain of the Anne, former coworker of Blackbeard—in general, pirate. He is also—at least through Labor Day—my friend Butch Roy.

Butch is an actor, a founder of the Twin Cities Improv Festival, and the executive director of Huge Theater here in Minneapolis. This summer, he took on a new role, playing pirate Richard Nolan in the Science Museum of Minnesota's Real Pirates exhibit.

When I first heard about Real Pirates I wasn't terribly excited. It sounded like the sort of kiddie-friendly, fact-lite thing that I tend to avoid on museum trips. I mean, for god's sake, there were actors running around going, "Arrgh," at people. But then I got a chance to talk to Butch about what, exactly, he was doing in the exhibit—and what it took to prepare for the role.

Butch and his cohorts aren't just playing pirates—they're playing real, documented people. What's more, all the actors had to build their characters from the ground up, using original historical sources and doing a lot of extra research on their own. They had to learn the skills of a pirate and the skills associated with their specific role on the ship. Butch, at least in theory, now knows how to load and fire an 18th century cannon. His fellow actor Michael Ritchie, who plays ship's surgeon James Ferguson, is up-to-date on all the latest medical research and techniques, circa 1717. The sheer volume of historical information Butch has picked up is absolutely fascinating.

I have no idea whether or not the actual exhibit, Real Pirates, is worthwhile as an educational tool. But you should DEFINITELY find one of the pretend pirates and take them out for a beer.

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Searching for Magic in India and Silicon Valley: An Interview with Daniel Kottke, Apple Employee #12


Daniel Kottke lives and works in Palo Alto, Ca. Here, he talks about the genesis of his 1974 trip to India with Steve Jobs.

Daniel Kottke was one of Apple's first employees, assembling the company's earliest kit computers with Steve Wozniak and Steve Jobs in a California kitchen. In 1974, Jobs and Kottke backpacked across India in search of themselves; now, they are industry legends. Along the way, he debugged circuit boards, helped design the Apple III and the Mac, and became host of Palo Alto cable TV show The Next Step.

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The Eighth Continent: Searching for the Great Pacific Garbage Patch

20 AUGUST—34°42' N 140°19' W

In the middle of the night, I dream that I am at the wheel of a great ship, sailing the Pacific Ocean. A hundred and fifty feet of steel, crowned with a dozen broad sails, forces itself forward through the waves. The rigging creaks with the roll of the ship. Water hisses along the lee rail. I adjust the wheel, peering at the binnacle to see our heading.

We’ve been at sea for nearly a week, and for weeks more we have no hope of seeing land. What we do hope to see, though, is something much rarer, something that amounts to a new and dark wonder of the world.

We are aboard the Kaisei, sailing to the Great Pacific Garbage Patch.

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Neal Stephenson's Some Remarks, a remarkable essay collection

Neal Stephenson is a talented essayist, a fact that anyone who read his seminal In the Beginning... Was the Command Line will be aware of. Some of the finest moments in his fiction is really nonfiction, essays that make up part of the story, which some critics take umbrage at. I love it. I happen to love discursive novels. But that said, Stephenson's essays are even more enjoyable than the discursions in his novels, which is saying something.

Some Remarks is a new collection of mostly reprinted, mostly nonfiction. I've read nearly every word in this collection before, some of it multiple times, but nevertheless found it to be a breezy, fast, and thoroughly enjoyable read.

The collection is dominated by Mother Earth Mother Board a "hacker tourist" travelogue that tells the story of the FLAG transoceanic cable, a pioneering privately funded project that was originally published in Wired magazine, which deserves kudos for having the bravery to commission an essay that runs to more than 100 pages in this 300-page book. This essay still stands as a kind of Moby-Dick for undersea cabling, a ferociously detailed, gripping account of an obscure but vital field that manages to be both highly technical and highly dramatic. I found my 2012 re-read of this essay much different from my original reading of it in 1996, in particular because of all the references to politics in middle eastern countries like Libya and Egypt, which have been so much in the news lately. There's a little frisson of history-in-the-making from this essay, as you realize that the establishment of redundant, high-speed network links into the region prefigured a vast, global change that we are still experiencing.

There are many other pieces in this book, including two pretty good short stories (Stephenson readily admits that he's at his best with fiction at much longer lengths), as well as some classic interviews and a speech in which Stephenson lays out a theory of the sort of work that he writes and its place relative to literature and culture.

There's an unabashedly esoteric and absolutely delightful account of Leibniz's metaphysics, and an evocative piece on life as a child in a midwestern college town. In short, there is the sort of highly varied and erudite contrasts that make Stephenson's novels so pleasurable (and important).

Stephenson lightly edited these essays to remove anachronistic irrelevancies, but some of them still stand as perfect reflections of the period in which they were written, time capsules and core samples of the heroic days of the early commercial Internet. This is, in short, a fantastic book and an indispensable companion to Stephenson's canon.

I'm also delighted to note that there's a Brilliance audio MP3CD unabridged audiobook edition.

Some Remarks

(Image: Neal Stephenson Answers Questions, a Creative Commons Attribution Share-Alike (2.0) image from jmpk's photostream)

Blackout: What's wrong with the American grid

It began with a few small mistakes.

Around 12:15, on the afternoon of August 14, 2003, a software program that helps monitor how well the electric grid is working in the American Midwest shut itself down after after it started getting incorrect input data. The problem was quickly fixed. But nobody turned the program back on again.

A little over an hour later, one of the six coal-fired generators at the Eastlake Power Plant in Ohio shut down. An hour after that, the alarm and monitoring system in the control room of one of the nation’s largest electric conglomerates failed. It, too, was left turned off.

Those three unrelated things—two faulty monitoring programs and one generator outage—weren’t catastrophic, in and of themselves. But they would eventually help create one of the most widespread blackouts in history. By 4:15 pm, 256 power plants were offline and 55 million people in eight states and Canada were in the dark. The Northeast Blackout of 2003 ended up costing us between $4 billion and $10 billion. That’s “billion”, with a “B”.

But this is about more than mere bad luck. The real causes of the 2003 blackout were fixable problems, and the good news is that, since then, we’ve made great strides in fixing them. The bad news, say some grid experts, is that we’re still not doing a great job of preparing our electric infrastructure for the future.

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Meet the people who keep your lights on

Power was restored today in India, where more than 600 million people had been living without electricity for two days. That's good news, but it's left many Americans wondering whether our own electric grid is vulnerable.

Here's the good news: The North American electric grid is not likely to crash in the kind of catastrophic way we've just seen in India. I'm currently interviewing scientists about the weaknesses in our system and what's being done to fix them and will have more on that for you tomorrow or Friday.

In the meantime, I wanted to share a chapter from Before the Lights Go Out, my book about electric infrastructure and the future of energy. If you want to understand why our grid is weak, you first need to understand how it works. The key thing to know is this—at any given moment, in any given place, we must have an almost perfect balance between electric supply and electric demand. Fluctuations of even fractions of a percent can send parts of the system towards blackout.

More importantly, that careful balance does not manage itself. Across North America there are people working, 24-7, to make sure that your lights can turn on, your refrigerator runs, and your computer works. They're called grid controllers or system operators. Most utility customers have never heard of these guys, but we're all heavily dependent on them. They keep the grid alive and, in turn, they keep our lives functioning—all without the benefit of batteries or any kind of storage.

Joel Mickey has worked behind the curtain for twenty-five years, controlling the flow of electricity first for the Houston Light and Power utility company and now for ERCOT, where he’s the director of market operating systems ... Like a lot of controllers, he worked his way up the pole, literally, starting out as an eighteen-year-old lineman —one of the people who show up on your block whenever a rogue tree branch takes out an electric wire. On Mickey’s desk at ERCOT, there’s a black-and-white photo of a very young kid in a hard hat, with a leather harness cinched around his hips. Linemen are a noticeable part of the electric system, but, at least when Mickey started working, they weren’t considered terribly special. Along with maintenance workers at substations and power plant operators, entry-level jobs such as this were lumped together under one bad pun—“Plant Life,” the single- celled algae at the bottom of a Great Chain of Being, which regarded the wizards of system control as the epitome of creation. It was pos- sible to evolve your way up the chain, but it wasn’t easy.

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Call your Senator today and stop the Cyber Security Act of 2012: it legalizes spying on your email, chats, photos, social behavior, and location for any purpose


Tiffiny from champion SOPA-fighters Fight for the Future says:

This year, grassroots movements defeated SOPA in the US and ACTA in Europe. We might be able to make another bad-idea bill, CISPA, go down in flames too (or get the privacy protections we've been fighting for). CISPA-- which already passed the House -- would give government access to all your personal data with no restrictions on what they could do with it. The Senate version of CISPA, which is slightly better but could be made much, much worse is going to final vote today.

If you have a secret --

Or think it's creepy that the government listens in on your cell phone calls, knows your location right now, reads your emails, all without a warrant? A bill going to vote today in Congress would make all of this government spying legal.

Millions of us aren't aware of this bill or don't realize how far they go.

That's why we're sharing this link: doyouhaveasecret.org

We took some time to try to capture exactly what's so dangerous and disturbing about having secrets at all.

This year, grassroots movements defeated SOPA in the US and ACTA in Europe. We might be able to make another bad-idea bill go down in flames too (or get the privacy protections we've been fighting for).

This could be the year for internet freedom and the open internet to prevail above huge amounts of lobbying dollars. And racking up wins on SOPA, CISPA, ACTA -- that'd be unprecedented. Millions of people could help make that happen.

Do you have a secret? (Thanks, Tiffiniy)

The Unbearable Lightness Of Being British

Photo: Shimelle (cc)

The epithets attached to the Olympic opening ceremony piled up: eclectic, spectacular, monumental, shambolic, parochial, world-beating, hideous, embarrassing, filmic, and even inspiring. In its parts, the spectacle was all of these things because of the whole, which formed a gush of free-floating anxiety, a confession on a therapist’s couch.

Many commented on the ceremony’s focus on times past, in what viewers outside of Britain took as a flamboyant history lesson or, less charitably, as a statement of a country with no future. This was, however, no simple portrayal of past events, but a raid conducted to shore up a particular view that exists at this time; a malaise suffered here and now.

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vN: a science fiction novel about robots, perverts, power and privilege


vN, Madeline Ashby's debut novel, drops today. I'm an immense fan of Ashby's work (I actually published her first story) and vN did not disappoint. The novel is set in a medium-term future where a race of self-replicating robots ("von Neumanns" or vNs for short) have been engineered to act as servile helpmeets by an apocalyptic Christian cult that wanted to leave behind a kind of relief mission for the unbelievers and heretics who'd be left behind by the Rapture. The vNs are engineered with a "failsafe" so that they cannot harm humans or allow humans to be harmed (sound familiar?). Even being in the same room as a human who has cut himself can send them into catatonia, and sometimes it's permanent.

The failsafe turns vNs into pathetic servants, sex-slaves, and whipping-posts. A nascent robots' rights movement has legitimized marriage between humans and robots, but these relationships are fraught by their vast power-divide. Meanwhile, all robots must watch their diets -- once they eat enough, they automatically bud off copies of themselves. Vast, vagrant hordes of vNs from uncatalogued clades and variants roam the landscape, scouring dumpsters and junkyards for electronics to consume. The copies that emerge aren't perfect -- rather, these "iterations" are randomly varied next-generations, and evolution is fast emerging every imaginable kind of robot.

Amy, the protagonist of the story, is the "daughter" of a robot and a human. Iterated from her robot mother, she is kept on a near-starvation diet to prevent her from growing up too quickly, and is sent to a human kindergarten where she must be treated with kid gloves -- one schoolyard fight or scuffed knee and she could end up bluescreened, catatonic at the sight of a human in distress. Very early in the story, Amy is cast out on her own, in pursuit of the dark secret of her maternal grandmother, the vN that iterated her mother, a freak of nature who has the power to harm humans, a power Amy may have inherited herself.

Ashby's debut is a fantastic adventure story that carries a sly philosophical payload about power and privilege, gender and race. It is often profound, and it is never boring.

vN: The First Machine Dynasty

Win tickets to San Francisco's Outside Lands music festival!

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Osl12 Logo Final Highres It's almost time for Outside Lands, the massive music festival in San Francisco's Golden Gate Park. This year's festival, August 10-12, features the likes of Foo Fighters, Beck, Sigur Ros, Regina Spektor, Explosions in the Sky, Yacht, Tame Impala, Die Antwoord, Neil Young, Stevie Wonder, Franz Ferdinand, Norah Jones, Metallica, and dozens of other diverse acts. Wanna go? Our friends at Outside Lands provided a pair of 3-day tickets for the festival, a $450 value, to give to someone in the BB community. Here's how to win them:

Snap a photo that is quintessentially "summer." Then pick a song from one of this year's Outside Lands artists that epitomizes the image. (Or start with the song and then take the photo!) Next, post the image and the song title/artist to Instagram with the hashtag #OSLBOING. And if you're not into Instagram, you can post the image and song title/artist to Twitter using the #OSLBOING hashtag. Or if you really don't like either of those options, post the image and the song/artist to Flickr or anywhere else and link to it in the comments thread below. You have until 11:59pm PT on Tuesday (7/31). On Wednesday (8/1), I'll post our three favorites. Those three finalists will all receive Boing Boing t-shirts! And Friday (8/3), we'll announce the winner of the Outside Lands 3-Day Tickets! Please only one entry per person.

Good luck!

More men join the ranks of Former Eagle Scout

On Monday, I published a letter from my husband, Christopher Baker, to the Boy Scouts of America. In that letter, Baker returned his hard-earned Eagle Scout award and explained that he no longer wanted to be associated with an organization that discriminated against gay teenagers and GBLT parents. By the end of the day, I'd posted six updates to that story—adding letters from other Eagle Scouts who had joined my husband in resigning from a fraternity they had loved and had worked incredibly hard to join.

The Boy Scouts of America is a private organization. The Supreme Court has said they have the right to discriminate. What these Eagle Scouts are saying is that legal precedent doesn't make the discrimination right. Overwhelmingly, they've said that it makes them sad to see the organization that meant so much to them go against the very values of inclusion that it taught them as children. As Baker wrote, "banning openly gay scouts and leaders is not a neutral position any more than separate-but-equal was a neutral position on race."

Yesterday, I received more letters from other Eagle Scouts who want the Boy Scouts of America to know how disappointed they are, and that they choose to stand with the persecuted rather than with the people doing the persecuting. In this post, you can read inspiring words from 13 Eagle Scouts who asked that I share their letters. In most cases, I've included a photo of the letter, and quoted text for easy reading. They're worth reading. These are amazing men.

Well, amazing men, and one woman. I'm starting out this collection with the letter of Dr. Julie Praus.

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The wonder of small things

From a public perspective, biology in the oceans, like biology on the land, tends to favor the charismatic megafauna. Stop by your local aquarium and you'll find masses huddled around the seal pool or the shark tank. People will even attempt to interact with the octopodes. Meanwhile, smaller creatures sit on the sidelines. Crabs, starfish, and ray-like skates have some admirers at the touch tanks. But in the world of small things, they're actually quite large. The ocean is full of even tinier organisms—worms and snails, small shelled animals and even stationary colonies of life that look like rocks or lumps of sand.

The ocean is an amazing place, and Bill Grossman can tell you about the things that live there—large, small, or tiny. Grossman is specimen collector for the Marine Biological Laboratory. Essentially, he's part of a system of support staff for scientists. When researchers at MBL need sea creatures to study, it's people like Grossman who go out on the water and find them.

Back in May, I got to take a short trip aboard the R/V Gemma, MBL's specimen collection boat. The videos I brought back can teach you some amazing things about animals you thought you knew well, and introduce you to creatures you probably never noticed before.

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