In this ten minute TEDx talk, Hugo Campos explains his frustration with the fact that his pacemaker is designed to let his doctor read his biometric status, but to stop the patient from doing the same. As a result, Campos isn't able to use his pacemaker as a diagnostic tool to help make good choices about eating, exercise and other activities. He writes,
I have an implantable cardioverter defibrillator (ICD) for primary prevention of sudden cardiac arrest. I have been fighting for my right to access the data collected by the ICD for about 3 years now, without much success. Data about my heart is regularly collected from the implanted device by its manufacturer over remote monitoring.
The modern ICD is a sophisticated computer capable of detecting and treating malignant arrhythmias. It is also capable of wireless telemetry, a feature that is used by all device manufacturers for remote patient monitoring. Today, there are about 5 top manufacturers of pacemakers and ICDs and 1MM patients being remotely monitored on a regular basis. Not a single one of these patients is allowed access to their device's data.
I am sure you'd agree that this is an objectionable practice and it must be stopped.
TEDxCambridge - Hugo Campos fights for the right to open his heart's data
Benji Edwards’s guide to preserving vintage electronics is a fascinating look into all the ways that even solid-state gear can go off in long-term storage: a lot of stuff (batteries, capacitors and even rubber) can leak viscous, electronics-destroying liquids; plastics break down in UV light; mold and corrosion eat your gear from within; spiders, crickets […]
Indiana U is selling off a huge lot of lab equipment, including these space-pod-looking gantries. Winning bidder is responsible for dismantling and shipping. “To give someone an idea of how large these are, there are two pits that they sit in. Each of the pits are 28’x35’x10′ deep.”
Vertu, the “luxury” cellphone maker whose handsets look like drug cartel handguns and are always comically obsolete, went out of business last month, reports the BBC. It is to auction off its inventory. Bids start at $26,000. Thuy Ong: The auctioneer, G J Wisdom & Co, says the phones are a mix of concept models […]
The Pry.Me Bottle Opener holds tens of thousands of times its own weight, and you can pick one up now from the Boing Boing Store.This remarkable keychain is considerably smaller than any of your keys, but don’t let that fool you: it can easily open any bottle, and could even tow a trailer full of […]
Guaranteeing your privacy online goes way beyond checking the “Do Not Track” option in your browser’s settings. To ensure that your internet activity is totally hidden from Internet Service Providers, advertisers, and other prying eyes, take a look at Windscribe’s VPN protection. It usually costs $7.50 per month, but you can get a 3-year subscription […]
This project management bundle will help you get organized and learn how to lead a team to success. You can pay what you want for these five courses when you pick them up from the Boing Boing Store.To help you become an invaluable asset for your company, this bundle includes a curated collection of professional […]