The family of Henrietta Lacks — a woman whose cervical cancer cells were harvested and used in scientific research for decades without her knowledge or consent — will now play a role in deciding who has access to the Lacks' cell genome data, and for what purposes. There are loopholes in the new system. For instance, the agreement only applies to scientists who receive National Institutes of Health funding. And the genome of the cells has been sequenced so many times, at this point, that anybody who wasn't NIH funded and didn't want to voluntarily abide by the agreement essentially wouldn't have to.
But it is a big step forward, both for the Lacks family (whose own genetic information is contained in those genome sequences) and for the idea that human genetic information belongs to the people it comes from — not to whoever happens to sequence it.
The happy selfie posted here features NIH director Francis Collins posing with some of Henrietta Lacks' descendants after the agreement was announced.
Mathematician Stephen Wolfram and his company do a lot of consulting for Hollywood. But he doesn’t often do it on an urgent basis because a movie is about to shoot and they neglected to “tech the tech.” When I first started looking at the script for [Arrival], I quickly realized that to make coherent suggestions […]
Can you “hear” motion or light flashes? If so, according to new research from City University London, you may be experiencing a not-so-rare form of synaesthesia. Synesthesia is the fascinating neurological phenomenon whereby stimulation of one sense involuntarily triggers another sensory pathway. For example, a synesthete might taste sounds or hear colors. (In this study, […]
Scientists declared the ruby seadragon a new species in 2015, but that was based on dead specimens in a museum. Now though, Scripps Institution of Oceanography biologist Greg Rouse who led the team that originally discovered the species, managed to find two of the wonderful fish swimming around the Recherche Archipelago, off the south coast […]
You know as well as I that writing complex, long-long form text requires significant organization. You’re probably also well aware that Word just isn’t up to the task. That’s why I’m a huge fan of Scrivener, the software suite used by best-selling authors and technical writers alike.Scrivener is much more than another digital typewriter. With a […]
Looking to upgrade your weekend? Here are three randomly awesome products on my mind this week.#3 FRESHeBUDS Pro Magnetic Bluetooth EarbudsAs more and more phones and gadgets switch to Bluetooth-only compatibility, you’ll need to get Bluetooth headphones like the rest of us. I’ve been super impressed with these affordable magnetic headphones. Pull the magnetic earbuds apart to auto-connect […]
Traditional folding wallets are designed for paper bills—but these days, carrying cash is rarely a necessity. More often than not, I don’t carry cash at all. This Bogui Clik Wallet is the best answer I’ve found for avoiding the hassle of those tight-fitting credit card pockets.This attractive, minimalist wallet features a protective lip, so my cards don’t […]