The family of Henrietta Lacks — a woman whose cervical cancer cells were harvested and used in scientific research for decades without her knowledge or consent — will now play a role in deciding who has access to the Lacks' cell genome data, and for what purposes. There are loopholes in the new system. For instance, the agreement only applies to scientists who receive National Institutes of Health funding. And the genome of the cells has been sequenced so many times, at this point, that anybody who wasn't NIH funded and didn't want to voluntarily abide by the agreement essentially wouldn't have to.
But it is a big step forward, both for the Lacks family (whose own genetic information is contained in those genome sequences) and for the idea that human genetic information belongs to the people it comes from — not to whoever happens to sequence it.
The happy selfie posted here features NIH director Francis Collins posing with some of Henrietta Lacks' descendants after the agreement was announced.
NASA’s Langley Research Center in Hampton, Virginia turns 100 this year. In celebration, the space agency produced this short documentary and enlisted Captain Kirk himself, William Shatner, to narrate. Here are just a few highlights from NASA Langley’s incredible history: • In times of peace and war, NASA Langley helped to create a better airplane, […]
Rio Celeste is a gorgeous Costa Rican river with a length that’s famous for its unusual turquoise waters. After decades of guessing, scientists finally determined the cause was aluminosilicate:
AntsCanada (previously) has an overpopulation problem in his yellow crazy ant colony, so he added two kinds of carnivorous pitcher plants. The resulting relationship between ant versus plant turned out to be quite fascinating.
The Fader Stealth Quadcopter from TRNDlabs packs incredible flight performance into a package small enough to land on your phone screen, and it’s available now in the Boing Boing Store.The Fader’s six-axis gyroscope module gives it perfect balance in the air. This makes the onboard 720p HD camera all the better for shooting amazing flight […]
Although fully autonomous vehicles aren’t yet allowed on public streets, they are poised to dominate the roads in the not-too-distant future. But before that happens, Apple, Google, Uber, and other companies now investing in self-driving tech are going to need talented developers that can account for the dizzying array of factors at play when a […]
The PiCar-V learning kit comes with everything you need to build a Python-powered robot, and it’s currently being offered in the Boing Boing Store.