The family of Henrietta Lacks — a woman whose cervical cancer cells were harvested and used in scientific research for decades without her knowledge or consent — will now play a role in deciding who has access to the Lacks' cell genome data, and for what purposes. There are loopholes in the new system. For instance, the agreement only applies to scientists who receive National Institutes of Health funding. And the genome of the cells has been sequenced so many times, at this point, that anybody who wasn't NIH funded and didn't want to voluntarily abide by the agreement essentially wouldn't have to.
But it is a big step forward, both for the Lacks family (whose own genetic information is contained in those genome sequences) and for the idea that human genetic information belongs to the people it comes from — not to whoever happens to sequence it.
The happy selfie posted here features NIH director Francis Collins posing with some of Henrietta Lacks' descendants after the agreement was announced.
Texas State University’s Body Farm (AKA Forensic Anthropology Center at Texas State University or FACTS) is a 45-year-old facility where the corpses of medical body donors are left to decompose so that researchers can observe the rate at which human remains are consumed by the elements, scavengers and microbes, allowing them to accurately date the […]
A better understanding how a sperm swims its way toward an egg could help inform new treatments for male infertility. Researchers from the University of York have now come up with a mathematical formula to model how large numbers of moving sperm interact with fluid they’re swimming through. From the University: By analysing the head […]
Dr Gale Ridge is a public entomologist at the Connecticut Agricultural Experiment Station, where an average of 23 people a day call, write or visit; an increasing proportion of them aren’t inquiring about actual insects, they’re suffering from delusional parasitosis, and they’re desperate and even suicidal.
When you can’t wait for the world’s longest meeting to end, the mindless leg bouncing makes your boredom obvious and just annoys everybody else. Everyone knows the TPS reports need the damn cover sheet, but some sadistic colleague keeps forgetting, probably on purpose just to eat into your lunch hour. Enough is enough!While serving a […]
What could be more fun than a slingshot that shoots tiny airplanes? A slingshot that shoots tiny glowing airplanes of course! These toy planes are outfitted with ultra-bright LEDs, so you can fly all night without losing them in the trees.Whether you are a regular-sized child, or an overgrown adult one, these light-up flyers offer […]
You know the drill. You go to the dentist and they ask you how often you floss. You lie through your teeth and say, “every day!” (Bonus points if you have some cilantro or chives stuck in your gums from lunch). You don’t want to keep up the charade any longer, but rubbing that tiny strand […]