The family of Henrietta Lacks — a woman whose cervical cancer cells were harvested and used in scientific research for decades without her knowledge or consent — will now play a role in deciding who has access to the Lacks' cell genome data, and for what purposes. There are loopholes in the new system. For instance, the agreement only applies to scientists who receive National Institutes of Health funding. And the genome of the cells has been sequenced so many times, at this point, that anybody who wasn't NIH funded and didn't want to voluntarily abide by the agreement essentially wouldn't have to.
But it is a big step forward, both for the Lacks family (whose own genetic information is contained in those genome sequences) and for the idea that human genetic information belongs to the people it comes from — not to whoever happens to sequence it.
The happy selfie posted here features NIH director Francis Collins posing with some of Henrietta Lacks' descendants after the agreement was announced.
Eliza writes, “A researcher from Lehigh University has invented a light-based pacemaker for fruit flies, and says a human version is ‘not impossible.’ The pacemaker relies on the new technique of ‘optogenetics,’ in which light-sensitive proteins are inserted into certain cells, allowing those cells to be activated by pulses of light. Here, the proteins were […]
San Francisco recently doubled the number of walls it was coating with hydrophobic paint, which is supposed to deter wall-pissing by making the urine spray back all over the pee-er.
“A sneezing monkey, a walking fish and a jewel-like snake are just some of a biological treasure trove of over 200 new species discovered in the Eastern Himalayas in recent years,” reports the World Wildlife Foundation today.
You won’t need to think twice about going hands-free on the road with Exomount’s easy-to-use car mount. It mounts your smartphone so easily, you literally only need one hand to quickly secure your phone in the perfect position and get driving. Don’t risk a ticket, use the world’s best suction technology to effortlessly mount and […]
It’s time for a power upgrade — throw out that tired-out power strip and swap in this family-size USB charger, packed with 6 high-speed ports. With a built-in control chip, Kinkoo optimizes each port to ensure the fastest charging possible for all your devices. The Kinkoo is made from high-grade and durable materials so you […]
Watching Netflix, Hulu or other streaming services can unfortunately be difficult while traveling outside the US. Rather than bypass these restrictions with the help of a complex and slow VPN, choose a faster and simpler solution with Getflix. Instead of rerouting all your Internet traffic through a different server, this handy service only routes the […]