Antonio Carbajal, his mother, and his grandmother have all been diagnosed with ALS, or amyotrophic lateral sclerosis. His grandmother died, his mom is dying, and Antonio is now living with the beginning phases of the degenerative neuromuscular syndrome. This video is his response to the currently viral "Ice Bucket Challenge" advocacy campaign raising money for ALS research. $41 million has been raised so far.
My father died of ALS when I was 10. Many other family members also died of ALS, the same "familial" strain Antonio and his mom have. Very few cases of ALS appear in family clusters, so that's where the term for the subset of the disease comes from.
Antonio is right. It's a terrible, terrible disease. There is currently no cure, and no treatment to arrest the disease's progress.
I was diagnosed with breast cancer in 2011 and consider myself lucky to not have received my dad's diagnosis.
I hope scientists find a cure, a cause, a treatment, some progress. We have not much more to offer people with Lou Gehrig's disease than when my daddy died.
Below, a video Anthony made when he was first diagnosed in January, 2014. There's an online campaign to help him pay for medical care. Yay, American health care system. He makes an appeal to Ellen DeGeneres in the video -- she accepted and he'll be appearing on the Ellen Show soon. Follow him on Twitter.
Where are our petabyte drives? Brian Hayes takes us through the reasons storage is “stuck” in the low terabytes. The tl;dr is that we got such exceptional capacity growth in the late 90s and early 00s we don’t need much more right now, so the focus since then has been on SSDs, networking, interfaces, etc, […]
Amélie Lamont, a former staffer at website-hosting startup Squarespace, writes that she often found herself disregarded and disrespected by her colleagues. One comment in particular, though, set her reeling — and came to exemplify her experiences there.
In this episode of the Flash Forward podcast we travel to a future where humans have decided to eradicate the most dangerous animal on the planet: mosquitos. How would we do it? Is it even possible? And what are the consequences? Flash Forward: RSS | iTunes | Twitter | Facebook | Web | Patreon We […]
Taking pictures can be challenging. There are a million factors that can influence each shot you take – and unless you’re a trained photographer, you often just focus, click…and cross your fingers.Of course, you can take some of the ambiguity out of your picture-taking with this Hollywood Art Institute Photography Course & Certification package, now […]
Experienced shutterbugs with DSLR cameras have boatloads of lens options for capturing the moment. Unfortunately, smartphone photographers often get stuck with their one crummy lens, which means limited zoom and focus for their final image.Step up your smartphone’s photographic power with the Acesori 5-Piece Smartphone Camera Lens Kit, now just $9.99 in the Boing Boing Store.Magnetic rings easily […]
Some truths are universal. For one, your phone will always run out of power when you most need it. For another, the charging cords that come packaged with your Apple device will fray, split, and rip faster than Usain Bolt in a game of tag.Instead, pick up a charging cord that anyone would have a tough […]