Activist and YouTuber Claire Wineland dies at age 21

Inspirational speaker and YouTuber Claire Wineland, who had cystic fibrosis, died Sunday night. The 21-year-old activist had a successful lung transplant on August 26, but days later she suffered a severe stroke.

According to BBC:

In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed."

At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness.

"Life isn't just about being happy... It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said.

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Watch this emotional moment when this woman takes her first breath after a double lung transplant

When she was nearly 30, Jennifer Jones learned that she had been misdiagnosed with allergies and asthma all her life. According to ABC 6 News, Jennifer discovered after the birth of her son, that she instead had Cystic Fibrosis, a disease that wreaks havoc (primarily) on the lungs.

"Last year in October she went in and it was getting so bad they put her on oxygen full time," said Jennifer’s Fiancé, Rob Ronnenberg.

Jennifer was put on a transplant list for new lungs in June, which is when things really got bad. In mid-October Jennifer’s lung function was a little over 10%.

But good news was headed their way.

"The nurse comes in the room and says hey you're going to get a phone call and then the phone rang and we're like okay, that's never happened so what's going on? Well, all of a sudden she goes are you for real, are you serious? Is this really happening? And that was it that was the call," Rob said.

Later the same month, she received that lifesaving double lung transplant. This video shows her taking her first unassisted breath with those new lungs. It's tremendously moving, to say the least.

By sharing this video on YouTube, she and her fiancé are hoping to inspire people to register to donate their organs.

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