At the Disability Rights Legal Center fundraiser gala this past weekend in Los Angeles, Apple was presented with DRLC's Business and Technology Award for their accessibility work, and 'Infinite Flow - A Wheelchair Dance Company' was featured as a cause auction recipient for an Apple Watch Series 3, which was designed with a number of accessibility-expanding features. Of particular note are its wheelchair-specific features, VoiceOver for the blind, and the Taptic Engine (haptic feedback for navigation and notification).
What's the connection between Apple Watch and wheelchair dance?
Activity on the Apple Watch is optimized for wheelchair users. taking into account different pushing techniques for varying speeds and terrain, Apple Watch tracks daily activity, encourages healthy routines through wheelchair-specific workouts, and prompts users to move with Time to Roll notifications.
(...) With sensors configured to address different surface types, inclines, and transition moments, such as moving from a wheelchair to a seat at a desk, the Apple Watch Series 3 is designed with accessibility in mind and ideal for the variety of dancers in Hamamoto's inclusive classes and performances.
Infinite Flow was founded in 2015 by Marisa Hamamoto
, a professional ballroom dancer who became temporarily paralyzed, then later regained the full use of her body.
Her group is America's first professional wheelchair ballroom dance company, and works to encourage others to dance inclusively, with and without physical limitations.
At the DRLC event on the Fox Studios lot, Hamamoto and guest artist Piotr Iwanicki did a live cha cha cha performance. Read the rest
Standing in the Mütter Museum of medical oddities, contemplating a neat row of jars, each containing a malformed fetus with spina bifida, Riva Lehrer realized just how easily she, too, could have ended up a specimen in a bottle, an object of curiosity, pathos, and, yes, revulsion. "Their spinal column failed to fuse all the way around their spinal cord, leaving holes (called lesions) in their spine," she writes, in a New York Times essay so scarifyingly honest it feels like self-anatomization. "Some extrude a bulging sac containing a section of the cord. These balloons make the fetuses appear as if they’re about to explode. This condition is called spina bifida. I stand in front of these tiny humans and try not to pass out. I have never seen what I looked like on the day I was born."
Born with Spina bifida, the survivor of scores of surgeries, Lehrer is "less than five feet tall." She writes, "I have a curved spine. I wear huge, clunky orthopedic boots." Yet as she notes in her Times essay, she no longer winces at her own reflection. Through her stunning, photorealistic portraits of people with disabilities—people like Mat Fraser, a.k.a. Sealo the Seal Boy from American Horror Story; Nomy Lamm, born with one leg smaller than the other; Lynn Manning, a blind actor and 1990 World Champion in Blind Judo shown brandishing his white cane like a katana—she has come to see "disabled bodies as unexpected and charming and exciting. Read the rest
A disability rights group is suing Uber over charges that the ride-hailing service violates New York City human rights laws by failing to ensure that enough of its vehicles are accessible to physically disabled riders.
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Nearly 250 million people in the world have impaired vision. Oxsight is developing augmented reality glasses that could supplement or even replace canes and seeing eye dogs for many. Read the rest
In Like Clockwork: Steampunk Pasts, Presents, and Futures
, Rachel A. Bowser and Brian Croxall present a lively, engaging collection of essays about the past, present, future (and alternate versions thereof) of steampunk culture, literature and meaning, ranging from disability and queerness to ethos and digital humanities. We're proud to present this long excerpt from the book's introduction.
IMGURian Ryan S. Miller posted this wonderful series of images: “Here is Jeremy's Costumer this year...The Ghostbusters Ecto-1!”
“Every year we've tried to step up the scale of the costume builds we do for Jeremy,” Ryan says. “This year we put it to a vote and our friends choose the Ghostbusters Ecto-1!”
Check it out in action, below.
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Meet Saqib, a Microsoft dev in London who lost the use of his eyes at age 7. Here's a neat little profile of his artificial intelligence development work from Microsoft Cognitive Services:
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Air travel is degrading, stressful, and humiliating enough as it is, so imagine doing it when you can’t get up and walk off the plane.
A man with physical disabilities was forced to crawled off a plane at Reagan National Airport in Arlington VA, when United Airlines failed to provide him with help disembarking.
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A new profile in The Guardian gets to know young women with ability challenges who are earning money and raising charitable funds
via online streaming service Twitch.
Mad Max: Fury Road has attracted praise for its deft handling of some of the themes that Hollywood normally gets very, very wrong. The way that women take charge, for example, the Gamergate crowd had the rare perspicacity to realize that Furiosa was a new, significant stride in the evolution of female action protagonists.
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In America, chicken has better health care than you.
From their inclusion in 16th-century paintings to their roles in famous families (including, probably, Darwin's), people with Down Syndrome are part of history.
At the Down Wit Dat blog, there's a 8-part (with more on the way) feature that provides some much-needed inclusion to people who are usually just a footnote to somebody else's history. Naturally, the series delves into ideas like eugenics and the institutionalization of differently abled Americans. But, even there, the story is centered on people with Down Syndrome and, as such, it offers a perspective and information that you likely haven't heard before. Great stuff.
Here's an excerpt about the short life of Charles Waring Darwin, the youngest child of the Charles Darwin you know. Based off historical records and the surviving photograph that you can see here, historians suspect that he had Down Syndrome.
Henrietta, one of his daughters, had this to say about Charles Waring in her book "Emma Darwin, A century of family letters...":
"The poor little baby was born without its full share of intelligence. Both my father and mother were infinitely tender towards him..."
Charles Darwin himself had this to say about his youngest child:
“He was small for his age and backward in walking and talking.... He was of a remarkable sweet, placid and joyful disposition, but had not high spirits.... He often made strange grimaces and shivered, when excited.... He would lie for a long time placidly on my lap looking with a steady and pleased expression at my face... Read the rest
While on assignment in the Philippines, reporter Miles O’Brien had an accident and lost his left arm. In the weeks that followed, he learned that every movement, no matter how small, requires rethinking.
Army Staff Sgt. Sam Shockley, who was injured in Afghanistan when he stepped on a buried bomb, prepares to work on his balance and on walking with prosthetic legs at Walter Reed National Military Medical Center in Bethesda. Matt McClain/The Washington Post
From the sixth in a 6-part Washington Post series on war and disability
: "The longest stretch of fighting in American history is producing disability claims at rates that surpass those of any of the country’s previous wars. Nearly half of Iraq and Afghanistan veterans are filing for these benefits when they leave the military — a flood of claims that has overwhelmed the VA and generated a backlog of 300,000 cases stuck in processing for more than 125 days. Some have languished for more than a year." The flood of claims peaked last year at 611,000. Read the rest
The (awful and not usually very trustworthy) New York Post reports that rich New Yorkers pay thousands of dollars to an Orlando area service that rents out disabled people to accompany them to Walt Disney World in order to jump the lines. The article says that there's a word-of-mouth underground in New York's priciest private schools, in which parents pass on the details of the service, which is allegedly called Dream Tours Florida:
Passing around the rogue guide service’s phone number recently became a shameless ritual among Manhattan’s private-school set during spring break. The service asks who referred you before they even take your call.
“It’s insider knowledge that very few have and share carefully,” said social anthropologist Dr. Wednesday Martin, who caught wind of the underground network while doing research for her upcoming book “Primates of Park Avenue.”
“Who wants a speed pass when you can use your black-market handicapped guide to circumvent the lines all together?” she said.
“So when you’re doing it, you’re affirming that you are one of the privileged insiders who has and shares this information.”
Rich Manhattan moms hire handicapped tour guides so kids can cut lines at Disney World [Tara Palmeri/New York Post]
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A couple weeks ago, I listened to Unfit for Work: The startling rise of disability in America an interesting program on the supposed rise in disability claims produced by Planet Money and aired on This American Life (where I heard it). The program raised some interesting points about the inaccessibility of certain kinds of less-physical jobs to large numbers of people, but it also aired a lot of supposed facts about the way that parents and teachers conspired to create and perpetuate disability classifications for kids.
Many of the claims in the report are debatable, and many, many more and simply not true. A Media Matters report called This American Life Features Error-Riddled Story On Disability And Children systematically debunks many of the claims in the story, which NPR has modified slightly since posting online (though NPR and Ira Glass continue to stand behind the story).
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FACT: Medical Evidence From Qualified Professionals Is Required To Determine Eligibility
Government Accountability Office: "Examiners Rely On A Combination Of Key Medical And Nonmedical Information Sources." A Government Accountability Office report found that disability determination services (DDS) examiners determined a child's medical eligibility for benefits based on a combination of school records and medical records, and that if medical records in particular were not available, they were able to order consultative exams to review medical evidence:
DDS examiners rely on a combination of key medical and nonmedical information sources -- such as medical records, effects of prescribed medications, school records, and teacher and parent assessments -- in determining a child's medical eligibility for benefits.